Pace Foundation
A national non-profit patient organization dedicated to improving diagnosis & treatment of persons with Pediatric Autoimmune Neurological Disorders The Pediatric Autoimmune neurologiCal rEsearch (PACE) Foundation, is a national non-profit patient organization dedicated to researching these disorders. PACE provides accurate and timely information for patients and families living with Children’s Postinfectious Autoimmune Encephalopathy (CPAE) and offers valuable resources. PACE… • Helps the patient and medical community gain a broader understanding of CPAE through education and outreach efforts; • Promotes, participates in, and conducts research that has helped characterize CPAE and has given patients and physicians substantially improved treatment options; • Addresses patient needs through public policy programs by focusing on issues such as insurance reimbursement, patient confidentiality, ensuring the safety and availability of immunoglobulin therapy, and maintaining and enhancing patient access to treatment options.
Founded
2016
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X (Twitter)
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Helping children with CPAE and PANS | PACE Foundation Advocacy. Education. Research. Together We Stand We are a national nonprofit organization dedicated to improving the diagnosis treatment and quality of life of children with Pediatric Autoimmune Neurological Disorders.
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Pace Foundation
💙 A Victory for the PANS/PANDAS Community. 💙� Louisiana just passed the Gillian Guiffreda Act, requiring insurance companies to cover the treatment of PANS/PANDAS — a massive step forward in helping children access the care they need and deserve. � This law was passed with unanimous support, showing the power of advocacy, science, and families speaking up.
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