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First ever international SETBP1 conference brings together families researchers and supporting organizations First ever international SETBP1 conference brings together families researchers and supporting organizations 22625 Kelsey Bennett In October 2024 nearly 100 BiteSized Breakthroughs February 6 2025 SETBP1 Genetics BiteSized Breakthroughs Breaking down new breakthroughs in SETBP1 research in an easy to digest way Welcome to our Looking back SETBP1 Society SETBP1HD Timeline As we spring into 2025 excited for the research and discoveries to come we look back into the history of SETBP1 Community Survey 2024 SETBP1 Society provided a survey to the SETBP1 Community for parents and caregivers to complete starting in April earlier this Faces of SETBP1 SETBP1 Society supports over 220 families impacted by SETBP1 haploinsufficiency disorder SETBP1HD and related disorders. We have a private Facebook SCoReS New Study Launch Results from Previous Studies New SETBP1 Behaviors and Characteristics Study Prior SCoReS Study Results New SETBP1 Behaviors and Characteristics Study Learn about a Read More Looking back SETBP1 Society SETBP1HD Timeline As we spring into 2025 excited for the research and discoveries to come we look back into the history of SETBP1 Society and SETBP1 haploinsufficiency disorder. From 2011 to today Read More BiteSized Breakthroughs December 18 2024 SETBP1 Genetics BiteSized Breakthroughs Breaking down new breakthroughs in SETBP1 research in an easy to digest way Welcome to our 4th SETBP1 Genetics Bitesized Breakthrough. This time we are looking Be the hope.