SETBP1 Society
President of SETBP1 Society and Parent Advocate for SETBP1-HD SETPB1 Society's mission is to provide support to individuals with SETBP1 haploinsufficiency disorde Our Mission is to provide support to individuals with SETBP1 disorder and their families, to promote discussion and fund research, and to bring awareness and education to the public.
ICO
820891558
819
X (Twitter)
322
Address
Austin
SETBP1 Society First ever international SETBP1 conference brings together families researchers and supporting organizations First ever international SETBP1 conference brings together families researchers and supporting organizations 22625 Kelsey Bennett In October 2024 nearly 100 BiteSized Breakthroughs February 6 2025 SETBP1 Genetics BiteSized Breakthroughs Breaking down new breakthroughs in SETBP1 research in an easy to digest way Welcome to our Looking back SETBP1 Society SETBP1HD Timeline As we spring into 2025 excited for the research and discoveries to come we look back into the history of SETBP1 Community Survey 2024 SETBP1 Society provided a survey to the SETBP1 Community for parents and caregivers to complete starting in April earlier this Faces of SETBP1 SETBP1 Society supports over 220 families impacted by SETBP1 haploinsufficiency disorder SETBP1HD and related disorders. We have a private Facebook SCoReS New Study Launch Results from Previous Studies New SETBP1 Behaviors and Characteristics Study Prior SCoReS Study Results New SETBP1 Behaviors and Characteristics Study Learn about a Read More Looking back SETBP1 Society SETBP1HD Timeline As we spring into 2025 excited for the research and discoveries to come we look back into the history of SETBP1 Society and SETBP1 haploinsufficiency disorder. From 2011 to today Read More BiteSized Breakthroughs December 18 2024 SETBP1 Genetics BiteSized Breakthroughs Breaking down new breakthroughs in SETBP1 research in an easy to digest way Welcome to our 4th SETBP1 Genetics Bitesized Breakthrough. This time we are looking Be the hope.
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Specifically Named Diseases Category
Organisations with similar rank to SETBP1 Society in category Specifically Named Diseases
Free Virtual Home Visiting Program | For First Time Parents | Supporting Families in New Mexico.
225. Twin Cities Lyme Foundation
Twin Cities Lyme Foundation is committed to raising and distributing funding for Lyme Disease while creating awareness through community events in order to support testing, diagnostic services and treatment for Lyme Disease.
SETPB1 Society's mission is to provide support to individuals with SETBP1 haploinsufficiency disorde.
WARRIORS in the Fight Against Lysosomal Storage Disorders.
228. DYSLEXIA ASSOCIATION OF THE PENNYRILE INC
Dyslexia Association provides screening services, educational tutorial, and community education on dy.
Austin
Organisations from SETBP1 Society
Private, non-profit organization providing homes and specialized services to individuals with special needs.
SETPB1 Society's mission is to provide support to individuals with SETBP1 haploinsufficiency disorde.
1073. Texas Neurological Society
The nation's largest state neurological society.
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CFC International is dedicated to the support, research and treatment of individuals living with CFC Syndrome.
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SETPB1 Society's mission is to provide support to individuals with SETBP1 haploinsufficiency disorde.
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