Childrens Rare Disease Organization Inc

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Many children are living with a rare disease. The complex challenges facing these children and families deserve attention and demand innovative treatment to meet unmet medical needs. However, research in this field is insufficient. The Children’s Rare Disease Organization, Inc. (the Organization) was created in order to fund research of rare diseases impacting children in an effort to find a cure or treatment. The organization hopes to promote research of rare children’s diseases and fund research labs and organizations, that focus on rare children’s diseases. Priority will be those challenging diseases with no underlying cause identified. Research progress in these kinds of diseases is extremely behind in the scientific field because of their complexity and unknown causes.

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2020

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Address: 7823 Pearson Knoll Pl, PotomacWeb: Sign in to see organisation websiteVolunteers: 3Revenue: 10927ICO: 861179378

Home - Childrens Rare Disease Organization DISCOVER ABOUT US Unmet Medical Need Limited Research Professional Support Show You Care Who We Are. The Organizations Board of Directors is composed of highly educated Ph. Ds. and M.

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Sarah

It's heartbreaking to think about the challenges these children face. I'm proud to support an organization that prioritizes research and brings hope to families! Keep up the amazing work! 💪✨ #RareDiseaseAwareness

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George

- How can partnerships between NGOs and pharmaceutical companies enhance the development of treatments for rare diseases in children?

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Katherine

Thank you for your incredible work in supporting children with rare diseases! Every effort counts, and I'm grateful to see such dedicated professionals making a difference! ❤️ #EveryChildEverywhere

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Denise

- What strategies can NGO's employ to increase awareness and funding for rare children's diseases, considering the limited research currently available?

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Potomac

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