AUTOIMMUNE REGISTRY INC

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We're a nonprofit foundation seeking to provide a single database for patients with autoimmune diseases. #autoimmune The Autoimmune Registry is a hub for research, statistics and data on all autoimmune diseases. Our mission is to reduce the time of diagnosis, support research, compute prevalence statistics, and establish autoimmune disease as a major class of disease so that it receives the awareness of the public, the attention of healthcare providers, and the appropriate funding needed to improve upon existing treatment protocols and disease management strategies.

Founded

2016

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1900

X (Twitter)

473

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4634379

Address: 125 West Ln, GuilfordWeb: Sign in to see organisation websiteFacebook: AutoimmuneRegistryX (Twitter): AutoimmuneRegVolunteers: 10Revenue: 70136ICO: 811688265

Autoimmune Registry Inc. PatientDriven Data Whats new on our website. Check out our new list of over 100 autoimmune diseases. Weve updated the disease profiles with new prevalence figures as well as new graphics based on data from All of Us and our registry. Go to the new Disease List Why an all autoimmune disease registry.

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Miles

Excited to see the updated disease profiles! This is a huge step towards better understanding and supporting those with autoimmune diseases. Keep up the amazing work! 🌟 #AutoimmuneRegistry

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Barbara

1. How can the Autoimmune Registry improve outreach to diverse populations to ensure comprehensive data collection across all demographics affected by autoimmune diseases?

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AUTOIMMUNE REGISTRY INC

The Autoimmune Registry hosts a monthly webinar to bring together patient advocacy groups related to autoimmune diseases. This month, we have invited Estela Mata-Carcamo from Looms for Lupus, Inc. , who will share personal stories from diagnosis to daily challenges, empowering individuals, strengthening community ties, and influencing change across healthcare systems.

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Monica

2. In what ways can patient-driven data contribute to the advancement of research and treatment options for lesser-known autoimmune diseases?

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Robin

So grateful for the important work you're doing! This registry will make such a difference for those affected by autoimmune diseases. 💙 #AutoimmuneAwareness

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AUTOIMMUNE REGISTRY INC

What's the connection between suppressing anger and autoimmune disease. Learn more about the long-held belief that suppressed emotions can possibly contribute to physical illnesses. - https://www.

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