Curedrpla Inc
I’m a parent advocate for DRPLA, a rare genetic disease. Join the DRPLA community on Facebook https://t.co/raasSKa4BV Connecting patients, families and researchers to further DRPLA research and work towards a treatment Connecting patients, families, clinicians and researchers to further DRPLA research and work towards a cure.
ICO
843925441
116
X (Twitter)
53
Address
Brooklyn
CureDRPLA | US-Based Non-Profit by Paul & Andrea Compton CureDRPLA Global Patient Registry is available. What is DRPLA. Dentatorubralpallidoluysian atrophy commonly known as DRPLA is a progressive brain disorder that affects coordination balance speech and causes involuntary movements emotional problems and a decline in thinking ability. The average age of onset of DRPLA is 30 years but this condition can appear anytime from infancy to adulthood.
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Nonmonetary Support N.E.C.* Category
Organisations with similar rank to Curedrpla Inc in category Nonmonetary Support N.E.C.*
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Connecting patients, families and researchers to further DRPLA research and work towards a treatment.
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Connecting patients, families and researchers to further DRPLA research and work towards a treatment.
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Friends of "R" House is a volunteer-run organization that works in concert with City of Mountain View to research, preserve, interpret, and promote the history of pioneering Henry Rengstorff, his family, the house, and the early history of Mountain View.
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