Curedrpla Inc
I’m a parent advocate for DRPLA, a rare genetic disease. Join the DRPLA community on Facebook https://t.co/raasSKa4BV Connecting patients, families and researchers to further DRPLA research and work towards a treatment Connecting patients, families, clinicians and researchers to further DRPLA research and work towards a cure.
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CureDRPLA | US-Based Non-Profit by Paul & Andrea Compton CureDRPLA Global Patient Registry is available. What is DRPLA. Dentatorubralpallidoluysian atrophy commonly known as DRPLA is a progressive brain disorder that affects coordination balance speech and causes involuntary movements emotional problems and a decline in thinking ability. The average age of onset of DRPLA is 30 years but this condition can appear anytime from infancy to adulthood.
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From Social media
News about Curedrpla Inc from their social media (Facebook and X).
- Curedrpla Inc
- 2025-08-04
Scientists created a mouse model with the genetic change that causes DRPLA in people and treated them with a type of genetic therapy called antisense oligonucleotides. (tw) ... more
Liked (0) Commented (0)- Curedrpla Inc
- 2025-07-31
Since DRPLA is more prevalent in Japan, CureDRPLA has made it a priority to build connections with the scientific and clinical community there. (fb) ... more
Liked (7) Commented (0)Discussions
Odpovědí v diskuzi
1
1. What are some effective strategies for raising awareness about DRPLA among healthcare professionals and the general public?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
2. How can we enhance collaboration between families affected by DRPLA and researchers to accelerate the development of potential treatments?
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Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
So grateful for the work that CureDRPLA is doing to support families and advance research! Together, we can make a difference in the lives of those affected by DRPLA. #CureDRPLA 💙
Brooklyn Simmons
Product Manager
Every step towards raising awareness for DRPLA is a step closer to finding a treatment! Thank you for connecting patients, families, and researchers. Let's keep the momentum going! #DRPLAVoice 🌟
Brooklyn Simmons
Product Manager
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