Mississippi Metabolics Foundation
Hi, I am Shannah, mom to Emmalyn, who has a rare genetic metabolic disorder, Glutaric Aciduria/Acidemia Type 1. Mississippi Metabolics Foundation's (MMF) was founded with the primary mission to raise awareness, educate, and provide support to those living or caring for someone with genetic metabolic disorders/Inborn Errors of Metabolism. We advocate for the continued expansion and implementation of Newborn Screening Programs and access to available resources for caregivers/patients. MMF promotes and supports further advancements in research, studies, and treatments for Metabolic Disorders/IEM. We are increasing the community involvement in MS for rare genetic Metabolic Disorders and helping families navigate their rare disease journey.
ICO
842340619
Web
msmetabolics.org
Address
Columbus
Mississippi Metabolics Foundation Our Mission Mississippi Metabolics Foundation MMF was founded to raise awareness educate and provide support to those living or caring for someone with genetic metabolic disordersinborn errors of metabolism IEM. We advocate for the continued expansion and implementation of Newborn Screening Programs and access to available resources for caregiverspatients. MMF promotes and supports further advancements in legislation research trials and studies therapies targeted treatments and eventual cures for metabolic disorders IEMs and all rare genetic diseases. We are committed to increasing community involvement in Mississippi for rare genetic metabolic disorders and support families as they navigate their rare disease journey.
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Discussions
Odpovědí v diskuzi
1
1. What strategies can we implement to increase community involvement and awareness of genetic metabolic disorders in Mississippi?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
2. How can we better advocate for legislation that supports research and access to treatments for rare genetic diseases?
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Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
❤️ So proud of the Mississippi Metabolics Foundation for their commitment to raising awareness and supporting families affected by rare genetic metabolic disorders! Together, we can make a difference! #SupportIEM #MMF
Brooklyn Simmons
Product Manager
🙏 Thank you, MMF, for being a beacon of hope for families like ours navigating the challenges of genetic metabolic disorders. Your work in advocacy and education is truly making an impact! #RareDiseaseAwareness #CommunitySupport
Brooklyn Simmons
Product Manager
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