Haystack Project Inc
We are committed to the Ultra Rare Disease Community. Bringing together all stakeholders to educate & advocate for reimbursement policies. Haystack Project brings together the stakeholders connected to rare and ultra rare conditions to educate and advocate for public policies that recognize the unique circumstances of extremely rare conditions, their diagnosis, treatment and care.
Founded
2019
301
X (Twitter)
168
Address
Pinehurst
The Haystack Project The Voices of Rare and Ultra Rare Haystack Project is a nonprofit enabling rare and ultrarare disease patient advocacy organizations to highlight and address systemic obstacles to patient access. Our core mission is to evolve health care payment and delivery systems to make innovative quality treatments accessible to the patients they were meant to reach. Haystack Project working with Janet Woodcock on Rare Disease Approvals Read Pink Sheet Article here. Read Inside Health Policy Articles here and here.
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Alliance/Advocacy Organizations Category
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