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The Voices of Rare and Ultra Rare Haystack Project is a nonprofit enabling rare and ultrarare disease patient advocacy organizations to highlight and address systemic obstacles to patient access. Our core mission is to evolve health care payment and delivery systems to make innovative quality treatments accessible to the patients they were meant to reach. Haystack Project working with Janet Woodcock on Rare Disease Approvals Read Pink Sheet Article here. Read Inside Health Policy Articles here and here.