The TBCK Foundation

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We are a non-profit dedicated to advancing research, advocacy, and education for TBCK Syndrome. The mission of The TBCK Foundation is dedicated to serving families impacted by TBCK Syndrome through accelerating patient-led research, advocacy, education, and a dynamic system of support.

Founded

2018

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1100

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Stevensville

Address: 2801 Wildwood Lane, StevensvilleWeb: Sign in to see organisation websiteFacebook: thetbckfoundationVolunteers: 45Revenue: 268612ICO: 833095299

The TBCK Foundation Uniting Through Research Education ADVOCACY Mission Statement The TBCK Foundation is dedicated to serving families impacted by TBCK Syndrome through accelerating patientled research advocacy education and a dynamic system of support. Our Vision Commitment We are committed to nurturing diversity ensuring equitable treatment and fostering inclusion for all families affected by TBCK Syndrome. We envision intentional advancements through expanding accessibility to resources within the TBCK network that amplify a spectrum of voices including individuals with disabilities women LGBTQ community members and marginalized groups. Inclusivity enriches the multifaceted perspectives necessary to connect the patient voice with scientists and clinicians furthering research and ensuring that all families are served.

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Monica

🌟 I'm inspired by the commitment of the TBCK Foundation to inclusivity and diversity. Every family deserves access to the resources they need! Let's amplify our voices and support one another! #TBCKAwareness

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John

How can we foster collaboration between families impacted by TBCK Syndrome and researchers to ensure that patient voices are prioritized in research initiatives?

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Victor

What strategies can we implement to better engage and support marginalized communities within the TBCK Syndrome network?

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Ann

đź’™ So proud of the work being done by the TBCK Foundation! Together, we can make a real difference for families impacted by TBCK Syndrome. Let's keep pushing for research and advocacy! #TogetherForTBCK

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