OPMD Association
Advocates for Oculopharyngeal Muscular Dystrophy. We advocate for/serve people affected with Oculopharyngeal Muscular Dystrophy. OPMD.org The OPMD Association's Mission is to advocate for and serve people affected with Oculopharyngeal Muscular Dystrophy (OPMD) by providing education, resources and programs and by creating partnerships with research institutions and corporations in order to discover treatments and a cure for OPMD.
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OPMD Association - Be a part of the cure! OPMD InPerson Symposium learn more and register Learn More There is strength in numbers. Help us advocate for the OPMD Community Oculopharyngeal Muscular Dystrophy OPMD What is OPMD OPMD is a rare genetic degenerative disease affecting adults with symptom onset beginning between 4050 years. Many have the following symptoms OPMD Awareness Day Webinar video presents clinical insights patient perspectives clinical trial updates and resources. Dr.
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From Social media
News about OPMD Association from their social media (Facebook and X).
- OPMD Association
- 2025-06-05
Helpful information on OPMD and getting diagnosed. (tw) ... more
Liked (0) Commented (0)- OPMD Association
- 2025-05-17
Read our latest newsletter and find out what the OPMD Association has been working on. (tw) ... more
Liked (1) Commented (0)Discussions
Odpovědí v diskuzi
1
- What strategies can we implement to raise awareness about Oculopharyngeal Muscular Dystrophy in the broader community and attract more support for research initiatives?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
- How can collaboration between the OPMD Association and other organizations focused on rare diseases enhance our advocacy efforts and improve resources for affected individuals?
View
Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
Such an important cause! 💙 It's inspiring to see the OPMD Association bringing awareness and support to those affected by this rare condition. Let's stand together and make a difference! #OPMDAwareness
Brooklyn Simmons
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I'm so excited to see the OPMD InPerson Symposium coming up! This is such a great opportunity for education and connection within the community. Together we can advocate for those living with OPMD! 🌟 #FindACure
Brooklyn Simmons
Product Manager
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