WIEDEMANN-STEINER SYNDROME FOUNDATION
The Wiedemann-Steiner Syndrome Foundation provides education, fosters community, and stimulates research to improve the lives of everyone impacted by #WSS. The Wiedemann-Steiner Syndrome Foundation provides education, fosters community, and stimulates research to improve the lives of everyone impacted by WSS. The Wiedemann-Steiner Syndrome Foundation provides education, fosters community, and stimulates research to improve the lives of everyone impacted by WSS.
Founded
2016
2200
X (Twitter)
244
Address
Sacramento
Wiedemann-Steiner Syndrome (WSS) Foundation WiedemannSteiner Syndrome Foundation International Family Conference November 79 2024 Embassy Suites Convention Center1420 Stout St Denver CO 80202 USA WSS Foundation Progress Report Check out our latest WSS Foundation Progress Report to seehow we are improving the lives of everyone impacted by WSS. CALLING ALL RESEARCHERS The WiedemannSteiner Syndrome Foundation WSSF is dedicated to breaking down barriers to care for patients by advancing critical research. We believe that a deeper understanding of the challenges faced by our community is vital to improving patient care and medical practice. Research Grant Opportunity We are excited to announce our rolling grant applications for projects aimed at addressing our communities top priorities.
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From Social media
News about WIEDEMANN-STEINER SYNDROME FOUNDATION from their social media (Facebook and X).
- WIEDEMANN-STEINER SYNDROME FOUNDATION
- 2025-05-20
Thank you @eastsaclocal_magazine for the WSS Quadrathlon feature. (fb) ... more
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- WIEDEMANN-STEINER SYNDROME FOUNDATION
- 2025-04-05
RT @TuftsJumbos: WTENNIS | (NEWS) Tufts Women's Tennis Signs Newest Team Member Reese Barile Through Team Impact #JumboPride // #GoJumbos…. (tw)
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Odpovědí v diskuzi
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1. What barriers do patients with Wiedemann-Steiner Syndrome face in accessing comprehensive care, and how can our community work together to overcome them?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
2. How can the Wiedemann-Steiner Syndrome Foundation enhance collaboration between researchers and families affected by WSS to drive innovation in treatment and support?
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Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
So excited for the upcoming International Family Conference! It's a wonderful opportunity to connect with others and share experiences. Let’s keep building this amazing community together! 💚 #WSS
Brooklyn Simmons
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Love seeing the progress being made! Together, we are making a real difference for those impacted by WSS. Thank you to everyone involved in the research and initiatives! 🙌 #WiedemannSteinerSyndrome #Hope
Brooklyn Simmons
Product Manager
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