
Learn more about the Sturge-Weber Foundation
Embracing our uniqueness. We may be rare, but we're also
one in a million! Awareness and support for those living with SWS, KTS, PWB, Glaucoma, Seizures. We are here to improve the quality of life and care for families with the rare disease Sturge-Weber syndrome and associated PWB and KT conditions.
742485813
EIN
1987
Founded
Aurora, CO 80016 USA
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sturge-weber.org
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Be a Legacy Leader and help us plant seeds for a fruitful tomorrow. Learn More. Join us for lively mental health chats for Patients and Caregivers Welcome to The SturgeWeber Foundation The SturgeWeber Foundation39s The SWF global mission is to improve the quality of life and care for people with SturgeWeber syndrome and associated PortWine Birthmark conditions through tenacious collaboration with clinical partners and pioneers education advocacy research and friendly support. Find an event near you or join us for a virtual event here.
Professional Societies & Associations Alliance/Advocacy Organizations Birth Defects, Genetic Diseases
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