
Learn more about the Sturge-Weber Foundation
742485813
1987
Aurora, CO 80016 USA
sturge-weber.org
sturgeweber
sturgeweberfoundation
2435807
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News

🌞✈️ Summer’s here! Whether you’re planning a big trip or just enjoying the sunshine closer to home, we know that summer adventures with Sturge-Weber syndrome (SWS) can require a little extra preparation. Check out our latest video for expert tips on safe, fun, and stress-free travel with SWS. https://www.youtube.com/watch?v=4FPnQeBYiSU Plus, don’t forget these essentials for all your summer activities: • Stay hydrated—pack plenty of water and take breaks. • Choose shaded spots and reapply sunscreen every two hours. Watch for signs of overheating (like flushed skin or irritability) and head indoors if needed. • Keep up with medications and sun safety—your well-being comes first! Let’s make this summer memorable and safe for our SWS community. Share your summer photos and tips with us below! ☀️ #SturgeWeber #SWSCommunity #SummerTravel #SummerSafety #TravelTips (fb)

🎓 Huge congratulations to our very own Carley Elliers on her graduation from Southern Mississippi! Carley lives with Sturge Weber syndrome, but she’s never let it slow her down or define her limits. Her determination and positivity inspire all of us at Auxilia and the entire Sturge Weber community. We absolutely love her custom grad cap: “Sorry GNAQ gene, you’re not stopping me.” Carley, your resilience and spirit are truly remarkable, and we can’t wait to see all the incredible things you’ll accomplish in this next chapter. Here’s to your bright future! 🌟 (fb)

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About the organization
- G03, H01, G20 -
Be a Legacy Leader and help us plant seeds for a fruitful tomorrow. Learn More. Join us for lively mental health chats for Patients and Caregivers Welcome to The SturgeWeber Foundation The SturgeWeber Foundation39s The SWF global mission is to improve the quality of life and care for people with SturgeWeber syndrome and associated PortWine Birthmark conditions through tenacious collaboration with clinical partners and pioneers education advocacy research and friendly support. Find an event near you or join us for a virtual event here.
Professional Societies & Associations Alliance/Advocacy Organizations Birth Defects, Genetic Diseases