Sturge-Weber Foundation
Embracing our uniqueness. We may be rare, but we're also one in a million! Awareness and support for those living with SWS, KTS, PWB, Glaucoma, Seizures. We are here to improve the quality of life and care for families with the rare disease Sturge-Weber syndrome and associated PWB and KT conditions. The Sturge-Weber Foundation's (The SWF) international mission is to improve the quality of life and care for people with Sturge-Weber syndrome and associated Port Wine Birthmark conditions. We support them with collaborative education and advocacy in tandem with translational research as we promote effective management and awareness.
Founded
1987
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Learn more about the Sturge-Weber Foundation Be a Legacy Leader and help us plant seeds for a fruitful tomorrow. Learn More. Join us for lively mental health chats for Patients and Caregivers Welcome to The SturgeWeber Foundation The SturgeWeber Foundation39s The SWF global mission is to improve the quality of life and care for people with SturgeWeber syndrome and associated PortWine Birthmark conditions through tenacious collaboration with clinical partners and pioneers education advocacy research and friendly support. Find an event near you or join us for a virtual event here.
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We are here to improve the quality of life and care for families with the rare disease Sturge-Weber syndrome and associated PWB and KT conditions.
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