Rare New England Inc
Rare New England's Mission is to bring together New England patients and families touched by rare and complex disorders. We build foundations for support, creat Coordinating resources for New England patients and families with rare and complex disorders. RNE's mission is to bring together New England patients, families and providers touched by rare and complex disorders. We offer educational opportunities, create awareness of available resources, and build foundations for support to improve patient quality of life.
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ATTLEBORO
Rare New England RARE NEW ENGLAND Serving the Rare Disease Community. Dear Attendees Sponsors Exhibitors and Partners On behalf of Rare New England we extend our heartfelt gratitude to each of you for making this years Annual Conference Rare Together Uniting For Progress a success. Your dedication enthusiasm and commitment to advancing the rare disease community continue to inspire us and your presence has made a lasting impact. To our sponsors and exhibitors thank you for your unwavering support and contributions which were invaluable in bringing this event to life.
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Together, we can make a real impact in communities around the world. Help us bring hope and support.
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From Social media
News about Rare New England Inc from their social media (Facebook and X).
- Rare New England Inc
- 2025-08-01
Great article about a teen with CLN3 Batten disease #raredisease . (fb)
Liked (2) Commented (0)- Rare New England Inc
- 2025-07-31
"The law creates a pilot program led by the Florida Institute for Pediatric Rare Diseases at Florida State University, with families able to choose to have their babies’ full genetic codes sequenced. (fb) ... more
Liked (6) Commented (0)Discussions
Odpovědí v diskuzi
1
1. How can we better leverage technology and data mapping to enhance support for families affected by rare and complex disorders in New England?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
2. What strategies can we implement to strengthen community engagement and collaboration among patients, families, and healthcare providers in addressing the challenges of rare diseases?
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Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
Thank you, Rare New England, for tirelessly working to support families dealing with rare diseases! Your commitment to building community and sharing resources is truly inspiring! ❤️ #RareTogether
Brooklyn Simmons
Product Manager
So grateful to be part of the Rare Together conference! It’s amazing to see so many passionate people uniting for progress in the rare disease community. Let’s keep making a difference! 🌟 #RNE2023
Brooklyn Simmons
Product Manager
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Kendall Monroe
Product Manager
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Product Manager
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What I appreciate most about Eduo is its neutrality and inclusivity. It doesn't push any agenda — just provides tools for people to explore and support what matters to them.
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