LIV4THECURE

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Liv4TheCure’s mission is to promote awareness, help families and fund research for Wolf Hirschhorn Syndrome. Liv4theCure is a 501c3 nonprofit organization to advance science and technology for chromosomal… To fund research for children with rare chromosomal deletion syndromes.

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Address: 585 Troy Schenectady Rd, LathamWeb: Sign in to see organisation websiteFacebook: liv4thecureX (Twitter): Liv4theCureRevenue: 7475ICO: 822006780

Liv4TheCure The Children Research Events About Us How to Help Resources More. ADVANCING SCIENCE TECHNOLOGY FORRARE CHROMOSOMAL DELETION SYNDROMES Read Our Latest Blog Nanny Care A Parent39s Ally in Deletion Syndrome MORE ABOUT OUR MISSION OUR NAME Liv4TheCure39s mission is to advance science and technology for rare chromosomal deletion syndromes with a special focus on Wolf Hirschhorn Syndrome read Our Story for why. What is a Rare Disease. A rare disease is a disease that affects less than 200000 people at any given time.

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Paul

1. What innovative fundraising strategies have been most effective for organizations like Liv4TheCure in raising awareness and support for rare diseases such as Wolf Hirschhorn Syndrome?

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Eric

What an incredible mission! Every step we take towards understanding and treating Wolf Hirschhorn Syndrome brings us closer to hope for so many families. Proud to support Liv4TheCure! 💙✨

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Goldie

Let’s spread the word about rare diseases like WHS! Together, we can make a difference and help fund the essential research needed for these amazing kids. Join me in supporting Liv4TheCure! 🌟❤️

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William

2. How can advancements in gene therapy and technologies like CRISPR be effectively communicated to families affected by rare chromosomal deletion syndromes to instill hope and encourage participation in research?

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