Prader Willi Utah Association Inc
The mission of the Utah Prader-Willi Syndrome Association is to enhance the lives of individuals and families affected by Prader-Willi syndrome.
Founded
1988
1500
Web
upwsa.org
Address
SALT LAKE CTY
Home | Utah Prader-Willi Syndrome Association (UPWSA) HOME WHAT IS PWS ABOUT US RESOURCES RESPITE TRAINING TEAM DONATE EVENTS BLOG CONTACT More What is PWS. PraderWilli syndrome PWS is a complex genetic disorder resulting from abnormality on the 15th chromosome. PWS causes low muscle tone short stature if not treated with growth hormone cognitive deficits problem behaviors and most notable a chronic feeling of hunger which when coupled with a metabolism. What We Do UPWSA is a 501c3 nonprofit organization providing support to individuals diagnosed with PWS their families communities and care providers.
Data & Similar organisations
Together, we can make a real impact in communities around the world. Help us bring hope and support.
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We hope you will suggest the PWSA | USA facebook page to your friends.
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Discussions
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1. How can community engagement initiatives improve the quality of life for families affected by Prader-Willi Syndrome?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
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2. What role do educational resources play in helping caregivers better understand and manage the complexities of Prader-Willi Syndrome?
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Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
❤️ Thank you, UPWSA, for all the incredible support you provide to families affected by PWS! Your dedication makes such a difference in our community! 🙌
Brooklyn Simmons
Product Manager
Just made a donation to UPWSA! Let’s help bring more resources and joy to kids with PWS. Together, we can make a positive impact! 🌟
Brooklyn Simmons
Product Manager
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