Prader Willi Utah Association Inc

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The mission of the Utah Prader-Willi Syndrome Association is to enhance the lives of individuals and families affected by Prader-Willi syndrome.

Founded

1988

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SALT LAKE CTY

Address: 2652 E NOTTINGHAM WAY, SALT LAKE CTY Web: Sign in to see organisation websiteFacebook: upwsaVolunteers: 100Revenue: 291479ICO: 870468350

Home | Utah Prader-Willi Syndrome Association (UPWSA) HOME WHAT IS PWS ABOUT US RESOURCES RESPITE TRAINING TEAM DONATE EVENTS BLOG CONTACT More What is PWS. PraderWilli syndrome PWS is a complex genetic disorder resulting from abnormality on the 15th chromosome. PWS causes low muscle tone short stature if not treated with growth hormone cognitive deficits problem behaviors and most notable a chronic feeling of hunger which when coupled with a metabolism. What We Do UPWSA is a 501c3 nonprofit organization providing support to individuals diagnosed with PWS their families communities and care providers.

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Monica

❀️ Thank you, UPWSA, for all the incredible support you provide to families affected by PWS! Your dedication makes such a difference in our community! πŸ™Œ

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Jessica

1. How can community engagement initiatives improve the quality of life for families affected by Prader-Willi Syndrome?

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Ann

Just made a donation to UPWSA! Let’s help bring more resources and joy to kids with PWS. Together, we can make a positive impact! 🌟

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Anna

2. What role do educational resources play in helping caregivers better understand and manage the complexities of Prader-Willi Syndrome?

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