
COPA Syndrome Foundation – COPA Syndrome Foundation
The COPA syndrome is an inherited disorder that is caused by mutations in the COPA gene. Patients may develop the disease at a very young age or older The COPA Syndrome Foundation is on a mission to discover how the COPA syndrome autoimmune disease damages the lungs, joints and other organs. Today very little is known about the disease. Our goal is to raise public awareness about this disorder and fund research and genetic testing to move forcefully toward improving treatment options and medications. We strive to offer hope, and ultimately a cure, for those suffering with the COPA syndrome, and to support their families who carry this genetic disease.
811469999
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RICHMOND, TX 77406 USA
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copasyndrome.org
Web
COPASyndromeFoundation
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The COPA Syndrome Foundation is on a mission to discover how the COPA syndrome autoimmune disease damages the lungs joints and other organs. Today very little is known about the disease. Our goal is to raise public awareness about this disorder and fund research and genetic testing to move forcefully toward improving treatment options and medications. We strive to offer hope and ultimately a cure for those suffering with the COPA syndrome and to support their families who carry this genetic disease.
Diseases, Disorders, Medical Disciplines N.E.C.
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