CRUSH RETT SYNDROME
Crush Rett Syndrome's mission to is to raise awareness and funds for research to cure Rett Syndrome. Crush Rett Syndrome's mission is to raise awareness for Rett Syndrome and funds for effective treatments and ultimately a cure for Rett Syndrome. No salaries are being paid for any positions at this time so that we can direct all raised funds toward our mission. More than 350,000 people are afflicted with Rett Syndrome worldwide. We are working hard to give all of them a second chance at a normal life by accelerating the timeline for a cure that will reverse the symptoms.
Founded
2016
2300
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Gilbert
Crush Rett Syndrome - Raising Awareness & Funds to Cure Rett Syndrome OUR PASSION Raising awareness and funds to CRUSH Rett Syndrome out of existence. Give Back to Get More Join the team of families caregivers medical professionals and researchers that are going to cure Rett Syndrome Mission We are dedicated to providing energy passion and inspiration to raise awareness and funds accelerating the progress to find treatments and a cure for Rett Syndrome. We will make Rett Syndrome the first reversible neurological disorder to be cured. Events Our fundraising events are planned to enable the maximum exposure to our cause so that we can grow our network of kindhearted individuals and businesses that can help us reach our goal for a cure.
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CRUSH RETT SYNDROME
The 2nd adult patient dosed in Taysha's gene therapy trial is reporting positive results. “The two adult patients dosed with TSHA-102 have different mutations in their MECP2 gene that manifest in different phenotypes and clinical severity. Following treatment, both patients experienced improvement in key clinical domains impacting activities of daily living, including breathing dysrhythmia, autonomic function, socialization, and gross and fine motor skills.
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