Spata Foundation Inc
Our mission is to advocate, educate, and raise funds for research towards SPATA5 & SPATA5L1 Disorders The SPATA Foundation's Mission is to advocate, educate, and drive research towards SPATA5 and SPATA5L1 Related Disorders. Our hope is that our efforts will help us better understand the function of the genes & lead to treatment for disorders related to these genes.
ICO
933768682
579
Web
spatafoundation.org
Address
Palm Coast
The SPATA Foundation ABOUT FOR FAMILIES RESEARCH GET INVOLVED SHOP CONTACT More we are THE SPATA FOUNDATION A Patient Organization for those affected by SPATA5AFG2A and SPATA5L1AFG2B Related Genetic Disorders roadmap to a cure about us We are a patient organization dedicated to serving families affected by SPATA5 and SPATA5L1 Related Disorders. These are rare genetic disorders characterized by epilepsy hearing loss and global developmental and intellectual delay. our mission The SPATA Foundation39s Mission is to advocate educate and drive research for SPATA5 and SPATA5L1 Related Disorders. Our hope is that our efforts will help us better understand the function of the genes lead to treatment for disorders related to these genes.
Data & Similar organisations
Together, we can make a real impact in communities around the world. Help us bring hope and support.
Similar organisations
Rare Genomics Institute.
CLOVES Syndrome Community - Support, Research and Education.
Tbc1d24 foundation is a research organization and connecting site for caregivers, families, and those diagnosed with Tbc1d24 mutations.
Similar Organisations Worldwide
Cure Usher is a registered charity, number 1181293, in England and Wales.
Genetic Cures For Kids Inc (au)
Please help save Tallulah Moon and all kids living with SPG56.
THE CHILDREN'S RARE DISORDERS FUND LTD (uk)
The Children's Rare Disorders Fund is dedicated to curing childhood rare genetic disorders.
More from Palm Coast
Official Facebook Page of the Corolla Wild Horse Fund.
Flagler County Cultural Council Inc
The Flagler County Cultural Council is a nonprofit organization supporting arts, culture and history.
Similar social media (579)
The Pearl Leadership Institute
We transform people and economies.
The Basilia Womens Foundation is a 501c-3 Organization with its Public Charity Status 170 (b) (1) (A) (vi) Our mission is to Rehabilitate, Educate, Employ, Empower, and provide Love to our sisters who are survivors of abuse.
UNITED WAY OF SCHUYLER COUNTY INC
United Way of Schuyler County is a volunteer-led organization that mobilizes the resources and strategic thinking of the non-profit, private and public sectors to improve lives, strengthen the community, and build a stronger Schuyler County.
The Bedford Village Chowder & Marching Club was founded in 1956 with the mission to raise funds for local youth-related programs in the Village of Bedford, NY.
Category Birth Defects, Genetic Diseases Research
Prader-Willi Syndrome Association | USA
We hope you will suggest the PWSA | USA facebook page to your friends.
From Social media
News about Spata Foundation Inc from their social media (Facebook and X).
- Spata Foundation Inc
- 2025-05-16
We’re often asked why the fundraising is left up to the families. (fb) ... more
Liked (8) Commented (0)- Spata Foundation Inc
- 2025-02-28
Today is Rare Disease Day and we’d like to show you our REAL and RARE families. (fb) ... more
Liked (44) Commented (9)Discussions
Odpovědí v diskuzi
1
- What strategies can patient organizations like the SPATA Foundation use to effectively advocate for increased research funding for rare genetic disorders like SPATA5 and SPATA5L1?
View
Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
- How can families affected by SPATA5 and SPATA5L1 disorders engage with and support each other to improve their collective experience and raise awareness?
View
Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
❤️ Thank you, Spata Foundation, for shining a light on these rare disorders. Together, we can create hope and change for families like Nicholas, Mariah, and Luca George! #SpataFoundation #HopeForCures
Brooklyn Simmons
Product Manager
🌟 So inspired by your mission to advocate for those affected by SPATA5 and SPATA5L1 Disorders! Let's spread awareness and work together to make a difference! #RareDiseaseAwareness #GetInvolved
Brooklyn Simmons
Product Manager
Share your comment / review / opinion
Kendall Monroe
Product Manager
Join us and make a difference for the future!
Eduo is where compassion meets clarity.
Brooklyn Simmons
Product Manager
The idea behind Eduo is genius — let the community build and improve profiles of nonprofit organizations worldwide. It creates trust and motivates engagement.
Kendall Monroe
Product Manager
I stumbled on Eduo by accident and ended up spending hours learning about different charities across the world. It’s like a global map of goodness
Madison Carter
Product Manager
Like Wikipedia for nonprofits — but even more inspiring.
Riley Bennett
Product Manager
Simple interface, deep purpose. Eduo makes it easy for everyday people to become part of a global community doing good.
Sydney Parker
Product Manager
Clean, community-driven, and full of heart — love it.
Jordan Blake
Product Manager
Like Wikipedia for nonprofits — but even more inspiring.
Brooklyn Simmons
Product Manager
As a teacher, I use Eduo in class to show students how civic engagement works. It’s inspiring and educational. Highly recommend for schools and community groups.
Kendall Monroe
Product Manager
Sign Up
Please fill in your information. Everything is free, we might contact you with updates (but cancel any time!)
Sign in with Google