Fight for Phoebe Inc
Our eight year old daughter Phoebe has been diagnosed with Hemophagocytic Lymphohistiocytosis (HLH), a life-threatening immunodeficiency. Fight for Phoebe, Inc is a 501(c)(3) organization dedicated to helping local people and families with hemophagocytic lymphohistiocytosis (HLH) and other orphan diseases through: Advocacy: Providing financial assistance through local providers and help families understand the diagnosis, treatment options, insuring that they and care providers understand their rights as patients. Education: Increasing community awareness of the disease and treatments, to include bone marrow transplantation, especially for minorities. Research: Work with national groups to advance research into histio diseases.
ICO
821883268
1600
X (Twitter)
1
Address
Severna Park
Fundraising | Fight For Phoebe Home Blog About Us Our Store Support Us Contact Us More We are a charity dedicated to helping local people and families with hemophagocytic lymphohistiocytosis HLH and other orphan diseases News Learn about our fundraising and other events Support Us Join us in raising awareness for HLH and other orphan diseases. Our Story Why we do this 2019 by Fight for Phoebe Inc. fightforphoebeincgmail. com .
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Fund Raising and/or Fund Distribution Category
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