
Abetalipoproteinemia and Related Disorders Foundation
Abetalipoproteinemia and Related Disorders Foundation is a non-profit, volunteer organization that provides guidance on needed scientific research, diagnosis, and management of abetalipoproteinemia and related hypolipidemias. Abetalipoproteinemia and Related Disorders Foundation is a non-profit, volunteer organization that provides guidance on needed scientific research, diagnosis, and management of abetalipoproteinemia and related hypolipidemias, such as chylomicron retention disease and familial hypobetalipoproteinemia. Because these are very rare illnesses, there is limited research and no cure. Patients can sometimes go undiagnosed for years, and insurance companies may not recognize treatments.

ICO
842454179
48
Web
Sign in to see organisation website
Address
Woodbury
ABL+ Foundation | Supporting Rare Hypolipidemia Diseases ABL Foundation supports individuals with ultrarare hypolipidemia diseases Find Resources Donate Patient Stories In 1965 the term rare diseases was almost unheard of in the United States. Born that year Paul was diagnosed with Abetalipoproteinemia ABL a rare genetic disorder. I lead the life I want to live. If you take anything away from my story please realize that ABL and the other illnesses the ABL Foundation is concerned with are all treatable with proper diet and vitamins.
From Social media
News about from their social media (Facebook and X).
Data about organisation
Specifically Named Diseases Category
Organisations with similar rank to Abetalipoproteinemia and Related Disorders Foundation in category Specifically Named Diseases

350. Abetalipoproteinemia and Related Disorders Foundation
Abetalipoproteinemia and Related Disorders Foundation is a non-profit, volunteer organization that provides guidance on needed scientific research, diagnosis, and management of abetalipoproteinemia and related hypolipidemias.
Woodbury
Organisations from Abetalipoproteinemia and Related Disorders Foundation

66. Ministerio Una Cita Con Dios
Este ministerio muestra el amor de Dios a la humanidad llevando el Evangelio a la calle.

68. Abetalipoproteinemia and Related Disorders Foundation
Abetalipoproteinemia and Related Disorders Foundation is a non-profit, volunteer organization that provides guidance on needed scientific research, diagnosis, and management of abetalipoproteinemia and related hypolipidemias.
Similar organisations
Similar organisations to Abetalipoproteinemia and Related Disorders Foundation based on mission, location, activites.

HEMOCHROMATOSIS INFORMATION SOCIETY
The Hemochromatosis Information Society is a nonprofit organization providing valuable information to patients and physicians concerning hereditary hemochromatosis.

Pursuing a cure for cystic fibrosis and supporting people with CF to live long, fulfilling lives.

NATIONAL GAUCHER FOUNDATION INC
The National Gaucher Foundation (NGF) is an independent nonprofit serving U.

We are a 501(c)(3) non-profit devoted to funding scientific research towards a treatment or cure for human prion diseases.

Aplastic Anemia and MDS International Foundation
Fighting Bone Marrow Failure Diseases through Patient Support and Research -Aplastic Anemia, MDS, PNH.
Similar Organisations Worldwide
Organisations in the world similar to Abetalipoproteinemia and Related Disorders Foundation.

Patient-led organisation for people with Familial Chylomicronaemia Syndrome, we were previously called LPLD Alliance.

THE GAUCHERS ASSOCIATION LIMITED (uk)
The Gauchers Association was formed in 1991 to meet the needs of those diagnosed with Gaucher diseas.

HUGHES SYNDROME FOUNDATION (uk)
APS Support UK is a national UK charity dedicated to anyone affected by antiphospholipid syndrome.
Interesting nearby
Interesting organisations close by to residence of Abetalipoproteinemia and Related Disorders Foundation

Long Island Council on Alcoholism and Drug Dependence, Inc.
LICADD is committed to building healthier communities.

“Nossa missão é aliviar o sofrimento das crianças brasileiras com epidermólise bolhosa, aumentando sua qualidade de vida e a daqueles com quem convivem".

Unitarian Universalist Trauma Response Ministry Inc
Unitarian Universalist Trauma Response Ministry provides culturally sensitive spiritual care to survivors of mass disasters and other significant trauma.

Abetalipoproteinemia and Related Disorders Foundation
Abetalipoproteinemia and Related Disorders Foundation is a non-profit, volunteer organization that provides guidance on needed scientific research, diagnosis, and management of abetalipoproteinemia and related hypolipidemias.
Similar social media (48)
Organisations with similar social media impact to Abetalipoproteinemia and Related Disorders Foundation

240943. Abetalipoproteinemia and Related Disorders Foundation
Abetalipoproteinemia and Related Disorders Foundation is a non-profit, volunteer organization that provides guidance on needed scientific research, diagnosis, and management of abetalipoproteinemia and related hypolipidemias.

240944. Reading Equity Project
Only 10% of Washington State students benefit from the way schools teach reading, and instruction method impacts achievement more than IQ or hard work.

240945. StarterBlox Foundation Inc
We increase access to quality education for Jamaican and Haitian young women by providing school supplies, sanitary products, & technological devices.
Join us and make a difference for the future!
Sign Up
Please fill in your information. Everything is free, we might contact you with updates (but cancel any time!)
Sign in with GoogleOr
Good News

🌍❤️ Exciting news from Orlando! AARP's "Walk with a Doc" is paving the way for healthier lives in Central Florida. Just a few miles of walking, great conversations, and direct health advice from doctors! Let's keep active and connected! #GoodNews #CommunityHealth #WalkWithADoc
A New Path to Health: How AARP Orlando's Walk with a Doc Is Building a Stronger, Healthier Central FL
AARP States
Like Comment
🌟 Incredible initiative in the U.S.! A café owner in Maine is providing free meals for those facing food insecurity due to the government shutdown. This act of kindness reminds us all of the power of community and compassion. 💖 Let's support local heroes! #CommunityLove #GoodNews
I'm a café owner in Maine. I'm feeding those about to lose their SNAP benefits for free.
Business Insider
Like Comment