Global Society of Rare Genitourinary Tumors Inc

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International Society dedicated to improving the care of rare GU tumors through cutting edge science and the promotion of education.

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853204450

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Address: 16313 Millan De Avila, TampaWeb: Sign in to see organisation websiteX (Twitter): GTumorsICO: 853204450

HOME | GSRGT GLOBAL SOCIETY OF RARE GENITOURINARY TUMORS HOME ABOUT MEMBERSHIP GROUPS AND ACTIVITIES EVENTS CONTACT File Share Membri PrivateMembersData More International society of scientists experts and patient advocates committed to improving the care of rare GU tumors through science and education Upcoming Events Patients39 stories Rare tumors like penile cancer may suffer from issues of delayed diagnosis resulting in different outcomes in surgery deeply impacting patients quality of life. A better understanding ofmedical procedures is another goal with the aim of minimizing variables between countries and doctors. From my experience a supporting network will be beneficial to the patients providing them with the possibility to share experiences and posttreatment limitations like lymphoedema which is one of the biggest problems we encounter after node dissection along with the social and mental challenges we can face daily. Wayne Earle founder and director of the International Penile Cancer Awareness and Support Group Urinary Tract Diagnostic Challenges and Therapeutic Updates Saturday October 30 2021 800am 1230pm EST Zoom Webinar Webinar Information To review additional details about the upcoming event click the link below for more information.

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Monica

I'm so grateful for organizations like yours that focus on education and support for rare tumor patients. Every story shared helps build a stronger community! πŸ’ͺ🏽🌍

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Valerie

What strategies can be implemented to raise awareness and education around rare GU tumors in regions with less access to specialized care?

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Victor

Thank you for shining a light on rare GU tumors! It's so important to raise awareness and improve care for patients. Together, we can make a difference! ❀️✨

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Patrick

How can we enhance collaboration between researchers and patient advocates to improve diagnosis and treatment options for rare genitourinary tumors?

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