Sickle Cell-Thalassemia Patients Network Inc

Sickle Cell Thalassemia Patients is dedicated to improving the quality of life for individuals and families living with sickle cell disease and other sickle cell syndromes through education, advocacy, support interactions, and referral to resources that will help to diminish the negative emotional, psychological, social, and economic impact of this debilitative condition.

Alliance/Advocacy Organizations Birth Defects, Genetic Diseases Health - General & Rehabilitative N.E.C.

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912089249

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SCTPN | Sickle Cell & Thalassemia Patient Network Sickle Cell is a Human Condition Sickle cell disease SCD is often defined as a Black disease. Although it affects people of African descent predominantly SCD is not exclusive to Africans and Black Americans. Sickle cell disease is indigenous to Southern China Southeast Asia the Mediterranean Middle East India Central and South America. About SCTPN Sickle CellThalassemia Patients Network SCTPN began in 1985 at Brooklyn Jewish Hospital now known as Interfaith Medical Center located in Brooklyn NYas an adult and parent support group for individuals with inherited blood disorders.

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Ann

It's time to break the stigma surrounding sickle cell disease and recognize it as a global issue. Proud to support SCTPN's mission and vision for a healthier future for all! 🌍✨

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Emil

1. How can we work towards increasing awareness about sickle cell disease and thalassemia in communities outside of the traditional demographics?

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Julius

Absolutely love the work SCTPN is doing to raise awareness and support for those affected by sickle cell disease and thalassemia! Together, we can make a difference and improve lives. 💪❤️

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Jill

2. What are some innovative strategies that NGOs like SCTPN can implement to enhance support systems for families affected by inherited blood disorders?

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