KrabbeConnect
KrabbeConnect's mission is to be the source of comprehensive information and access to resources for patients with Krabbe disease. The foundation will drive state of the art research by bridging the gap between science and patient knowledge. The organization seeks to revolutionize the practice of medicine by identifying, optimizing, and implementing advances in the care and cure of globoid cell leukodystrophy, utilizing a multicenter network. The organization’s goal is to achieve complete disease eradication through cooperation between patients, patient advocacy groups, clinicians, researchers, industry, and government. The organization is dedicated to the cooperative planning, implementation, analysis and reporting of controlled clinical trials, as well as observational studies and educat
Founded
2017
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Rosemount
Home - Krabbe Disease Information and Support - KrabbeConnect KrabbeConnect Connecting Patients and Research Welcome to KrabbeConnect KrabbeConnect seeks to revolutionize the practice of medicine by identifying optimizing and implementing advances in the care and cure of Krabbe disease and globoid cell leukodystrophyAnother name for Krabbe disease a rare and usually fatal disorder of the nervous system. utilizing a multicenter network. Our goal is to achieve complete krabbe disease eradication through cooperation between patients patient advocacy groups clinicians researchers industry and government. We are dedicated to the cooperative planning implementation analysis and reporting of controlled clinical trials as well as observational studies and educational activities within the Krabbe community.
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Rosemount
Organisations from KrabbeConnect
1. Quality Deer Management Association MN
Founded in 1988, the National Deer Association (NDA) is a non-profit wildlife conservation organization dedicated to ensuring the future of wild deer, wildlife habitat and hunting.
2. DAKOTA COUNTY TECHNICAL COLLEGE
Child of Minnesota State.
4. Minnesota Association of Veterinary Technicians
Networking and continuing education information site for Veterinary Technicians in Minnesota.
5. ROSEMOUNT AREA HOCKEY ASSOCIATION
Our mission is to inspire and develop young athletes through the sport of hockey.
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