The Desmoid Tumor Research Foundation Inc

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✨ Visit us on our website at DTRF.org The mission of The Desmoid Tumor Research Foundation is to aggressively fund research to accelerate the development of improved therapies, and ultimately find a cure for desmoid tumors. We collaborate with dedicated researchers and clinicians worldwide to improve the lives of patients through education, awareness and support.

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2005

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Address: c/o CliftonLarsonAllen LLP, 50 Tice Blvd Suite 175, Woodcliff LakeWeb: Sign in to see organisation websiteFacebook: DesmoidEmployees: 7Volunteers: 12Revenue: 333727ICO: 611493017

Home - The Desmoid Tumor Research Foundation Search Here The Desmoid Tumor Research Foundation About Desmoid Tumors Helpful Links Patients Caregivers Clinicians Researchers Research Get Involved About DTRF Were here to find answers with Research Advocacy Awareness and Support. The Desmoid Tumor Research Foundation is accelerating the race toward more treatments and a cure for each and every desmoid tumor patient. Read Our Mission Youve Come to the Right Place Whether you are a desmoid tumor patient caregiver researcher or clinician we can help you find answers. Stay Up to Date Join The DTRF Newsletter Join the Clinicians Researchers Newsletter NOVEMBER 27 2023 The U.

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Louise

Amazing work being done by the Desmoid Tumor Research Foundation! Together, we can bring awareness and funding to this important cause. Let's keep fighting for a cure! ❤️ #EndDesmoidTumors

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The Desmoid Tumor Research Foundation Inc

🎥 Watch a short message from Yating Wong, DTRF Board Member, to learn more about why she supports RFA Virtual. Join Yating and many other supporters who are raising vital funds for desmoid tumor research, education, and advocacy. ⁠ 📣 Running for Answers (RFA) is fully VIRTUAL this year.

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Julius

- How can patient advocacy influence research funding and support for desmoid tumor studies?

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Pamela

- What role do caregivers play in the treatment journey of desmoid tumor patients, and how can we better support them?

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The Desmoid Tumor Research Foundation Inc

🎥 A recording of our recent virtual event, "Understanding the Classification of Desmoid Tumors” is ready to watch. Spread the word by sharing this recording with your social networks today: https://vimeo. com/1089085286 Throughout the virtual event, we heard from our special guests about the challenges in communication faced by both patients and doctors, and what the desmoid community can do in the future to help alleviate misunderstandings about this rare disease.

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Lucy

So proud to see the FDA approval of OGSIVEO! This is such a huge step forward for the desmoid tumor community. 💪✨ Let's keep pushing for more research and support! #DTRF #Hope

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