Dysphagia Outreach Project

The Dysphagia Outreach Project is a US-based 501(c)(3) nonprofit organization dedicated to supporting individuals affected by dysphagia, a condition characterized by difficulty swallowing. The organization aims to provide meaningful assistance across the lifespan, from pediatric feeding disorders to adult swallowing disorders.

Mission

The mission of the Dysphagia Outreach Project is multifaceted. It seeks to collect and distribute dysphagia supplies to those in need, establish awareness and advocacy programs, offer education on the appropriate use of dysphagia supplies, and facilitate the formation of dysphagia support groups nationwide. The organization focuses on bridging access disparities for individuals with dysphagia, particularly those facing financial constraints due to insurance limitations.

Initiatives

• Dysphagia Food Bank: This initiative aims to provide essential products such as thickeners, pre-modified foods, and adaptive equipment to low-income individuals with dysphagia. The food bank addresses the financial burden caused by inconsistent insurance coverage for dysphagia supplies.
• Education and Advocacy: Besides providing tangible resources, the organization also offers educational materials and supports the dysphagia community by advocating for better awareness and evidence-based practices in swallowing disorders management.

Founding and Growth

The organization was founded by Hillary Cooper, who recognized the need for accessible dysphagia supplies during her private practice. Since its inception, the Dysphagia Outreach Project has grown rapidly, with a notable increase in recipient caseloads each year. It operates as a 100% volunteer-run organization, relying heavily on donations to sustain its mission.

Impact

Since 2020, the organization has shipped numerous supply packages, significantly impacting the lives of individuals with dysphagia by improving their access to essential tools and resources. These efforts have been instrumental in enhancing treatment outcomes and reducing the economic burden associated with managing dysphagia.

[1] https://www.dysphagiaoutreach.org/mission [2] https://dysphagiacafe.com/empowering-patients-with-dysphagia-the-impact-of-dysphagia-outreach-project/ [3] https://dscc.uic.edu/dscc_resource/dysphagia-outreach-project/ [4] https://www.dysphagiaoutreach.org/foodbank [5] https://dysphagiafoodbank.org