Pyruvate Kinase Deficiency Foundation
The Pyruvate Kinase Deficiency International Alliance is an international nonprofit organization whose mission is to enhance the quality of life for patients and their families by providing awareness, expanding education, and promoting advocacy.
ICO
863075169
844
Web
pkdf.org
Address
Wolverine Lake
Pyruvate Kinase Deficiency International Alliance-Home Pyruvate Kinase Deficiency International Alliance Enhancing the quality of life for patients with PK deficiency and their families by providing awareness expanding education and promoting advocacy. Featuring Bridging the PK Deficiency Community We are proud to announce the merger of the two primary nonprofits serving the PK deficiency community Pyruvate Kinase Deficiency Foundation and Thrive with Pyruvate Kinase Deficiency Organization to one combined organization entitled Pyruvate Kinase Deficiency International Alliance PKDIA. Pyruvate kinase deficiency is an ultrarare genetic hemolytic anemia that affects people and families of all ethnicities from around the world. Knowing that families living with PKD have contacted us from Tibet to Australia Brazil to Canada we are excited to extend our work internationally with hopes of finding countryspecific PKD ambassadors.
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Together, we can make a real impact in communities around the world. Help us bring hope and support.
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THRIVE WITH PYRUVATE KINASE DEFICIENCY ORGANIZATION
Thrive with Pyruvate Kinase Deficiency Organization connects treatment support, increased social awareness and advocacy to communities affected by PK deficiency.
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From Social media
News about Pyruvate Kinase Deficiency Foundation from their social media (Facebook and X).
- Pyruvate Kinase Deficiency Foundation
- 2025-06-27
Sign up for the *VIRTUAL* 3rd International Congress on Sickle Cell & Other Inherited Blood Disorders Congress, November 14-15, 2025. (fb) ... more
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- Pyruvate Kinase Deficiency Foundation
- 2025-06-14
June 14th is World Blood Donor Day, a day to honor those who have donated blood in the past year. (fb) ... more
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Odpovědí v diskuzi
1
1. What strategies can the PK Deficiency International Alliance implement to improve awareness and education about pyruvate kinase deficiency in underserved regions globally?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
2. How can the merger of the Pyruvate Kinase Deficiency Foundation and Thrive with Pyruvate Kinase Deficiency Organization enhance advocacy efforts for patients and families affected by PK deficiency?
View
Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
We are so grateful for the incredible work being done by the Pyruvate Kinase Deficiency International Alliance! 🌍 Together, we can make a difference in the lives of those affected by PK deficiency. Let’s spread awareness and support each other!
Brooklyn Simmons
Product Manager
It's amazing to see how far we've come with the merger of our organizations! 💪✨ Excited to help enhance the quality of life for families facing PK deficiency and continue advocating for our community globally! #PKDIA #StrengthInUnity
Brooklyn Simmons
Product Manager
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