Pyruvate Kinase Deficiency Foundation
The Pyruvate Kinase Deficiency International Alliance is an international nonprofit organization whose mission is to enhance the quality of life for patients and their families by providing awareness, expanding education, and promoting advocacy.
ICO
863075169
844
Web
Sign in to see organisation website
Address
Wolverine Lake
Pyruvate Kinase Deficiency International Alliance-Home Pyruvate Kinase Deficiency International Alliance Enhancing the quality of life for patients with PK deficiency and their families by providing awareness expanding education and promoting advocacy. Featuring Bridging the PK Deficiency Community We are proud to announce the merger of the two primary nonprofits serving the PK deficiency community Pyruvate Kinase Deficiency Foundation and Thrive with Pyruvate Kinase Deficiency Organization to one combined organization entitled Pyruvate Kinase Deficiency International Alliance PKDIA. Pyruvate kinase deficiency is an ultrarare genetic hemolytic anemia that affects people and families of all ethnicities from around the world. Knowing that families living with PKD have contacted us from Tibet to Australia Brazil to Canada we are excited to extend our work internationally with hopes of finding countryspecific PKD ambassadors.
From Social media
News about from their social media (Facebook and X).
June 14th is World Blood Donor Day, a day to honor those who have donated blood in the past year. Blood donors are a valuable source of life for women experiencing bleeding related to pregnancy and childbirth, children suffering from severe anemia due to malaria or malnutrition, supporting complex medical and surgical procedures, and for providing regular, lifelong treatments for people with hemolytic anemias like those living with sickle cell disease, thalassemia, hemophilia, and #pyruvatekinasedeficiency. They also play a critical role in natural disasters and emergencies.
Like Comment
Data about organisation
Health Support Services Category
Organisations with similar rank to Pyruvate Kinase Deficiency Foundation in category Health Support Services
Futuro Health makes education journeys into allied health careers possible by growing the talent that employers need and creating a path to opportunity that workers want.
813. Freedom Community Clinic Inc
Community-centered healing that integrates ancestral, Indigenous, and holistic practices with the strengths of Western medicine.
814. Pyruvate Kinase Deficiency Foundation
The Pyruvate Kinase Deficiency International Alliance is an international nonprofit organization whose mission is to enhance the quality of life for patients and their families by providing awareness, expanding education, and promoting advocacy.
To support equality for youth by providing perfect-fit clothing that directly improves their health.
816. Jordy Foundation A NJ Nonprofit Corporation
We have created this foundation after losing our daughter Jordyn to AML Leukemia in 2019.
Similar organisations
Similar organisations to Pyruvate Kinase Deficiency Foundation based on mission, location, activites.
Kids with Heart Parents Support Group
A non-profit organized to provide support, education, resources,& information to families of children.
Promoting health equity in our community through providing culturally intelligent, caring, and trust.
Benefiting Pediatric Cardiology.
Similar Organisations Worldwide
Organisations in the world similar to Pyruvate Kinase Deficiency Foundation.
CDKL5 is a rare x-linked disorder, resulting in early onset refractory epilepsy and severe neuro-developmental impairment.
INTERNATIONAL NIEMANN-PICK DISEASE ALLIANCE (uk)
A global network of non-profit organisations supporting those affected by Niemann-Pick Diseases.
PKD Foundation of Canada / Fondation canadienne de la MPR (ca)
Vision: No one suffers the full effects of polycystic kidney disease (PKD).
THE POLYCYSTIC KIDNEY DISEASE CHARITY (uk)
Weβre the UKβs only charity dedicated to supporting and providing information to everyone affected by polycystic kidney disease (PKD).
Interesting nearby
Interesting organisations close by to residence of Pyruvate Kinase Deficiency Foundation
Nonprofit organization.
Pyruvate Kinase Deficiency Foundation
The Pyruvate Kinase Deficiency International Alliance is an international nonprofit organization whose mission is to enhance the quality of life for patients and their families by providing awareness, expanding education, and promoting advocacy.
Similar social media (844)
Organisations with similar social media impact to Pyruvate Kinase Deficiency Foundation
"Serving others starts with breakfast" Meetings at Skillets, Boca Raton, at the Garden Shops.
To support equality for youth by providing perfect-fit clothing that directly improves their health.
175948. Pyruvate Kinase Deficiency Foundation
The Pyruvate Kinase Deficiency International Alliance is an international nonprofit organization whose mission is to enhance the quality of life for patients and their families by providing awareness, expanding education, and promoting advocacy.
Humanmade is a non-profit community-based training, manufacturing, and prototyping studio.
175950. Immaculate Heart Community
The Immaculate Heart Community, an inclusive ecumenical community, seeks to create access for all persons to truth, equity, justice and peace through spiritual development, education, the arts, and taking action that fosters care for the Earth.
Join us and make a difference for the future!
Sign Up
Please fill in your information. Everything is free, we might contact you with updates (but cancel any time!)
Sign in with GoogleOr
Good News
"Great to see National Guard troops stepping up to support communities during tough times! πͺπ Their efforts at the LA Regional Food Bank are a reminder of how we can all come together to help those in need. #CommunitySupport #GoodNews"
National Guard troops, deployed by Newsom, arrive at LA Regional Food Bank amid government shutdown
ABC7
Like CommentAmid the challenges of lost SNAP benefits, it's inspiring to see food banks stepping up! πβ¨ The Food Depot plans to expand distribution sites to ensure no one goes hungry. Together, we can support our communities in tough times! #FoodSecurity #CommunitySupport #PositiveImpact
New Mexico officials weighing options in advance of lost SNAP benefits
Yahoo
Like Comment