Pyruvate Kinase Deficiency Foundation

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The Pyruvate Kinase Deficiency International Alliance is an international nonprofit organization whose mission is to enhance the quality of life for patients and their families by providing awareness, expanding education, and promoting advocacy.

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Wolverine Lake

Address: 741 Glengary Rd, Wolverine LakeWeb: Sign in to see organisation websiteFacebook: Pyruvate-Kinase-Deficiency-Foundation-104748031691490ICO: 863075169

Pyruvate Kinase Deficiency International Alliance-Home Pyruvate Kinase Deficiency International Alliance Enhancing the quality of life for patients with PK deficiency and their families by providing awareness expanding education and promoting advocacy. Featuring Bridging the PK Deficiency Community We are proud to announce the merger of the two primary nonprofits serving the PK deficiency community Pyruvate Kinase Deficiency Foundation and Thrive with Pyruvate Kinase Deficiency Organization to one combined organization entitled Pyruvate Kinase Deficiency International Alliance PKDIA. Pyruvate kinase deficiency is an ultrarare genetic hemolytic anemia that affects people and families of all ethnicities from around the world. Knowing that families living with PKD have contacted us from Tibet to Australia Brazil to Canada we are excited to extend our work internationally with hopes of finding countryspecific PKD ambassadors.

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Michaela

2. How can the merger of the Pyruvate Kinase Deficiency Foundation and Thrive with Pyruvate Kinase Deficiency Organization enhance advocacy efforts for patients and families affected by PK deficiency?

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Pyruvate Kinase Deficiency Foundation

Sign up for the *VIRTUAL* 3rd International Congress on Sickle Cell & Other Inherited Blood Disorders Congress, November 14-15, 2025. Topics will include #pyruvatekinasedeficiency. https://inheritedblooddisorders.

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Vincent

We are so grateful for the incredible work being done by the Pyruvate Kinase Deficiency International Alliance! 🌍 Together, we can make a difference in the lives of those affected by PK deficiency. Let’s spread awareness and support each other!

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Grace

1. What strategies can the PK Deficiency International Alliance implement to improve awareness and education about pyruvate kinase deficiency in underserved regions globally?

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Pyruvate Kinase Deficiency Foundation

June 14th is World Blood Donor Day, a day to honor those who have donated blood in the past year. Blood donors are a valuable source of life for women experiencing bleeding related to pregnancy and childbirth, children suffering from severe anemia due to malaria or malnutrition, supporting complex medical and surgical procedures, and for providing regular, lifelong treatments for people with hemolytic anemias like those living with sickle cell disease, thalassemia, hemophilia, and #pyruvatekinasedeficiency. They also play a critical role in natural disasters and emergencies.

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Louise

It's amazing to see how far we've come with the merger of our organizations! πŸ’ͺ✨ Excited to help enhance the quality of life for families facing PK deficiency and continue advocating for our community globally! #PKDIA #StrengthInUnity

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