Beck Fahrner Syndrome Foundation
Our mission is to accelerate full spectrum research to cure Beck-Fahrner Syndrome (TET3 deficiency) and to empower affected families with information, knowledge, and connectivity.
ICO
872064508
Web
beckfahrner.org
Address
Anoka
Beck-Fahrner Syndrome Foundation, Nonprofit organization What is BeckFahrner Syndrome. BeckFahrner syndrome BEFAHRS is a rare genetic disorder caused by a gene variantmutation of the TET3 Tet Methylcytosine Dioxygenase 3 gene. In the case of BeckFahrner syndrome this mutation in the TET3 gene causes the TET3 protein to malfunction or to not to be produced sufficiently ultimately disrupting normal development and causing health problems. BeckFahrner syndrome is characterized by is characterized by global developmental delay andor intellectually disability with mild to severe intellectual impairment.
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DalšíDiscussions
Odpovědí v diskuzi
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1. What strategies can the Beck Fahrner Syndrome Foundation implement to foster stronger partnerships between researchers and families affected by Beck Fahrner syndrome?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
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2. How can we raise awareness about Beck Fahrner syndrome in local communities to ensure that families receive accurate information and support?
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Brooklyn Simmons
2 days ago
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Together, we can make a real impact in communities around the world. Help us bring hope and support.
💙 Thank you, Beck Fahrner Syndrome Foundation, for your dedication and support to families navigating this challenging journey. Together, we can spread awareness and hope for a brighter future! #BEFAHRS #CommunitySupport
Brooklyn Simmons
Product Manager
🌟 Grateful for the work you're doing to empower families affected by Beck Fahrner syndrome. The research you support is so important! Let's keep the conversation going and raise awareness! #EndTheStigma #HopeForCures
Brooklyn Simmons
Product Manager
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