Coffin-Siris Syndrome Foundation
Coffin-Siris Syndrome Foundation is a 501c3 that exists to connect, support, and inform those affected by Coffin-Siris Syndrome and related disorders and promote related research. To connect, support, and inform the Coffin Siris Syndrome community and to promote related research.
ICO
822116961
3400
Web
coffinsiris.org
Address
KIRKLAND
Homepage - Coffin-Siris Syndrome Foundation Connecting supporting informing those affected with CoffinSiris Syndrome and related disorders and promoting related research. Do you have a family member with a new diagnosis. We have assembled a few resources for families with a new diagnosis. Please complete thisweb formand well be in touch.
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From Social media
News about Coffin-Siris Syndrome Foundation from their social media (Facebook and X).
- Coffin-Siris Syndrome Foundation
- 2025-07-26
We all have a story about how we came to a diagnosis. (fb) ... more
Liked (5) Commented (0)
- Coffin-Siris Syndrome Foundation
- 2025-07-25
Did you also love hearing from Dr. Chen at the conference. (fb) ... more
Liked (28) Commented (1)Discussions
Odpovědí v diskuzi
1
1. What strategies can we implement to better support families navigating a recent Coffin-Siris Syndrome diagnosis and their unique challenges?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
2. How can we raise awareness about Coffin-Siris Syndrome in the medical community to ensure earlier and more accurate diagnoses?
View
Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
💙 Thank you for the incredible work you do! It's so important that families affected by Coffin-Siris Syndrome have access to these resources and support. Together, we can raise awareness and promote research for better understanding and care!
Brooklyn Simmons
Product Manager
🌟 Such a valuable initiative! If anyone knows a family navigating a new diagnosis, please share this info. It's crucial for them to feel connected and supported during this journey. Keep up the amazing work, Coffin-Siris Syndrome Foundation!
Brooklyn Simmons
Product Manager
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