Coffin-Siris Syndrome Foundation
Coffin-Siris Syndrome Foundation is a 501c3 that exists to connect, support, and inform those affected by Coffin-Siris Syndrome and related disorders and promote related research. To connect, support, and inform the Coffin Siris Syndrome community and to promote related research.
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Homepage - Coffin-Siris Syndrome Foundation Connecting supporting informing those affected with CoffinSiris Syndrome and related disorders and promoting related research. Do you have a family member with a new diagnosis. We have assembled a few resources for families with a new diagnosis. Please complete thisweb formand well be in touch.
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Coffin-Siris Syndrome Foundation
Our favorite geneticist is running the New York Marathon on November 2 and she is doing so in honor of all of her favorite patients, raising money for National Organization for Rare Disorders, Inc. (NORD) . She is dedicating a mile of her 26 to her CSS patients and her most adored loves.
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2025-10-24
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