My Kool Brother Inc
Director of Corporate Development & Investor at @sugar23 by day | Film Producer by night | Former child actor forever :)
ICO
873859594
0
X (Twitter)
452
Address
Wilmington
My Kool Brother Leading the change for a cure My Kool Brother was founded with the goal of developing better medical therapies and treatment options for individuals with Koolende Vries Syndrome KdVS. We hope to accomplish this by working directly with researchers and pharmaceutical companies. My Kool Brother was established in 2021 by Ashley Dana Point. Their son Davis was diagnosed with KdVS in February 2016 at the age of 16 months after several hospitalizations.
Data & Similar organisations
Together, we can make a real impact in communities around the world. Help us bring hope and support.
Similar organisations
Raising awareness, educating, and advancing research for KCNQ2 Developmental and Epileptic Encephalopathy.
Working to find a cure for #kcnh1 #raredisease and sharing Tristan’s story along the way.
Our mission is to provide life-saving research funding for children diagnosed with SIOD.
Similar Organisations Worldwide
Information, updates and advice about Kleefstra Syndrome, hosted by Kleefstra Syndrome UK.
The Luminesce Alliance is a world-leading paediatric research co-operative, established to harness the strengths of its partner organisations to unlock future prevention, treatments and ultimately, cures, for childhood illnesses.
More from Wilmington
Welcome to St John's College, a world-class Christian, African school situated in Houghton, Jo'burg.
HARBOR UNITED METHODIST CHURCH
The United Methodist Church is a worldwide connection of close to 10 million members in over 100 countries including Africa, Asia, Europe and the United States.
Similar social media (452)
Provide an outreach service to the houseless community through a mobile hygiene center.
SOUTH COLBY PARENT CHILD CO-OP
Where Families Learn Together Visit our website at http://www.
Changing lives of Veterans, Seniors and Youth by sharing the joy and freedom of being on the water to.
Category Specifically Named Diseases Research
Další Specifically Named Diseases ResearchDiscussions
Odpovědí v diskuzi
1
1. What strategies can we implement to enhance collaboration between NGOs, researchers, and pharmaceutical companies in the pursuit of effective treatments for rare diseases like Koolende Vries Syndrome?
View
Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
2. How can storytelling through film and documentaries, like "Davis Out of the Unknown," be leveraged to raise awareness and support for families affected by rare diseases?
View
Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
Incredible work, Ashley! Your dedication to raising awareness and finding a cure for Koolende Vries Syndrome is truly inspiring. 💙 Together, we can make a difference!
Brooklyn Simmons
Product Manager
Just watched the documentary about Davis—heartfelt and powerful! Thank you for shining a light on KdVS and bringing the community together for such an important cause. 🙌 #SupportRareDiseases
Brooklyn Simmons
Product Manager
Share your comment / review / opinion
Kendall Monroe
Product Manager
Join us and make a difference for the future!
As a volunteer, I love how Eduo.org empowers people to contribute locally. It feels like Wikipedia for good deeds — written by the people, for the people.
Brooklyn Simmons
Product Manager
I work in a nonprofit and listing our organization on Eduo.org helped us reach new audiences and even new volunteers. It’s easy to use and feels built with love.
Kendall Monroe
Product Manager
Simple interface, deep purpose. Eduo makes it easy for everyday people to become part of a global community doing good.
Madison Carter
Product Manager
Great for discovering hidden-gem organizations near me.
Riley Bennett
Product Manager
Simple interface, deep purpose. Eduo makes it easy for everyday people to become part of a global community doing good.
Sydney Parker
Product Manager
What I appreciate most about Eduo is its neutrality and inclusivity. It doesn't push any agenda — just provides tools for people to explore and support what matters to them.
Jordan Blake
Product Manager
Eduo is where compassion meets clarity.
Brooklyn Simmons
Product Manager
What I appreciate most about Eduo is its neutrality and inclusivity. It doesn't push any agenda — just provides tools for people to explore and support what matters to them.
Kendall Monroe
Product Manager
Sign Up
Please fill in your information. Everything is free, we might contact you with updates (but cancel any time!)
Sign in with Google