My Kool Brother Inc

Follow Message Edit

Director of Corporate Development & Investor at @sugar23 by day | Film Producer by night | Former child actor forever :)

ICO

873859594

Facebook

0

X (Twitter)

452

Address

Wilmington

Address: 5223 Masonboro Harbour Dr, WilmingtonWeb: Sign in to see organisation websiteX (Twitter): jesssicacarlsonICO: 873859594

My Kool Brother Leading the change for a cure My Kool Brother was founded with the goal of developing better medical therapies and treatment options for individuals with Koolende Vries Syndrome KdVS. We hope to accomplish this by working directly with researchers and pharmaceutical companies. My Kool Brother was established in 2021 by Ashley Dana Point. Their son Davis was diagnosed with KdVS in February 2016 at the age of 16 months after several hospitalizations.

News & Updates XX

From Social media

News about from their social media (Facebook and X).

Sarah

2. How can storytelling through film and documentaries, like "Davis Out of the Unknown," be leveraged to raise awareness and support for families affected by rare diseases?

Like Comment
Monica

Incredible work, Ashley! Your dedication to raising awareness and finding a cure for Koolende Vries Syndrome is truly inspiring. 💙 Together, we can make a difference!

Like Comment
Charlotte

Just watched the documentary about Davis—heartfelt and powerful! Thank you for shining a light on KdVS and bringing the community together for such an important cause. 🙌 #SupportRareDiseases

Like Comment
Manuel

1. What strategies can we implement to enhance collaboration between NGOs, researchers, and pharmaceutical companies in the pursuit of effective treatments for rare diseases like Koolende Vries Syndrome?

Like Comment
Collected information

Data about organisation

Specifically Named Diseases Research Category

Organisations with similar rank to My Kool Brother Inc in category Specifically Named Diseases Research

78. Cosmopolitan Diabetes Foundation Inc

Cosmopolitan International is a chartered not-for-profit civic service organization that was founded.

80. Virginia Diabetes Council

VDC is a 501c3 nonprofit dedicated to being an effective advocate for the issues and concerns of organizations providing diabetes management and prevention programing as well as raising awareness of diabetes and prediabetes.

81. Impact MS Now

Our mission is to raise awareness with our community outreach fundraising efforts that will directly .

More from Specifically Named Diseases Research

Wilmington

Organisations from My Kool Brother Inc

458. Delaware Art Education Association

The mission of the Delaware Art Education Association is to be a non profit organization that promot.

459. ContactLifeline, Inc.

Talk to someone who cares.

461. Flunk Cancer

Flunk Cancer is a non-profit dedicated to allowing teachers to "Just Live" when they are affected by cancer.

462. BROOKLYN ARTS MUSIC ACADEMY

Changing lives through music in Wilmington, North Carolina.

More from Wilmington

Similar organisations

Similar organisations to My Kool Brother Inc based on mission, location, activites.

Pandas Resource Network Inc

The PANDAS Resource Network is a national non-profit 501c3 organization dedicated solely to fighting.

Plasminogen Deficiency Foundation

A 501(c)(3) public charity dedicated to improving the lives of patients with plasminogen deficiency (PLGD).

More Similar Organisations

Similar Organisations Worldwide

Organisations in the world similar to My Kool Brother Inc.

KLEEFSTRA SYNDROME UK (uk)

Information, updates and advice about Kleefstra Syndrome, hosted by Kleefstra Syndrome UK.

Paediatrio Ltd (au)

The Luminesce Alliance is a world-leading paediatric research co-operative, established to harness the strengths of its partner organisations to unlock future prevention, treatments and ultimately, cures, for childhood illnesses.

More Similar Organisations Worldwide

Interesting nearby

Interesting organisations close by to residence of My Kool Brother Inc

More Interesting nearby

Similar social media (452)

Organisations with similar social media impact to My Kool Brother Inc

204826. Renewal Missions

Serving orphans and those with disabilities in Jesus name.

204828. Georgia Chapter of the Association for Learning Environments Inc

The Georgia Chapter of the Association for Learning Environments is a professional association dedicated to improving the places where children learn.

204829. Growing Garden Cities Inc

Planting fresh produce gardens in underserved communities.

Similar social media
Join us

Join us and make a difference for the future!

Eduo.org is my go-to platform for discovering nonprofit organizations that actually make a difference. The rankings, filters, and country-specific lists make it so easy to explore causes I care about. Brilliant initiative!

Brooklyn Simmons
Daniel

The idea behind Eduo is genius — let the community build and improve profiles of nonprofit organizations worldwide. It creates trust and motivates engagement.

Brooklyn Simmons
Barbara

Eduo is where compassion meets clarity.

Brooklyn Simmons
Yvette

The idea behind Eduo is genius — let the community build and improve profiles of nonprofit organizations worldwide. It creates trust and motivates engagement.

Brooklyn Simmons
Patrick

I work in a nonprofit and listing our organization on Eduo.org helped us reach new audiences and even new volunteers. It’s easy to use and feels built with love.

Brooklyn Simmons
Daniel

As a teacher, I use Eduo in class to show students how civic engagement works. It’s inspiring and educational. Highly recommend for schools and community groups.

Brooklyn Simmons
Joanna
Sign Up

Please fill in your information. Everything is free, we might contact you with updates (but cancel any time!)

Sign in with Google
Or
Collected information

Good News

Lukáš 2025-10-23

A groundbreaking decision from France! 🇫🇷 A court has convicted TotalEnergies for misleading climate claims. 🌍 This sets a precedent for holding corporations accountable in their environmental promises. Let's keep pushing for transparency and sustainability in all sectors! 💚 #ClimateJustice #Sustainability #GoodNews

French court convicts TotalEnergies over misleading climate claims

Yahoo

Like Comment
Tomáš 2025-10-23

Great news for 2.5 million borrowers! The Trump administration is resuming student loan forgiveness, helping many on their financial journey. #StudentLoanRelief #PositiveChange

Trump administration pledges to speed some student loan forgiveness after lawsuit

ABC7 New York

Like Comment
Lucille 2025-10-23

Exciting news in the tech world! 🤖 AIBotics is making waves by acquiring NovaCore Labs and partnering with KEENON Robotics to bring innovative service robots to Jamaica and CARICOM! 🌍 A great example of how technology can bridge communities and enhance lives. #GoodNews #TechForGood

AIBotics Signs LOI to Acquire Google Partner NovaCore Labs and Partners with KEENON Robotics to bring XMAN and Service Robots to Jamaica and the CARICOM - Aibotics (OTC:AIBT), Ehave (OTC:EHVVF)

Benzinga

Like Comment