COALITION TO CURE CHD2 INC
Fighting for our kiddos, and others, with CHD2-related neurodevelopmental disorders. Contact us: info@curechd2org The mission of Coalition to Cure CHD2 (CCC) is to improve the lives of those affected by CHD2-related disorders by funding research necessary for uncovering a cure.
ICO
854057370
X (Twitter)
586
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Dallas
Cure CHD2 Research Community Needs Assessment Spring 2024 In late March 2024 the Coalition to Cure CHD2 reached out to CHD2 families to fill out a community needs survey. We received 140 responses from 22 countries and 26 states in the US. Learn More Facebook Support Group Support group for parents caregivers family members of childrenyouthadults who are affected by a mutation deletion of the CHD2 gene. Learn More Getting Tested How to Get Diagnosed Getting diagnosed for CHD2 typically involves a combination of genetic testing a review of medical history a physical examination a neurological examination imaging studies and EEGs to support the diagnosis and understand the effects of the mutation.
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Category Fund Raising and/or Fund Distribution
Další Fund Raising and/or Fund Distribution
From Social media
News about COALITION TO CURE CHD2 INC from their social media (Facebook and X).
- COALITION TO CURE CHD2 INC
- 2025-05-30
Very excited about latest report from @IgorUlitsky's lab using an ASO to upregulate CHD2 expression. (tw)
Liked (6) Commented (0)- COALITION TO CURE CHD2 INC
- 2025-05-09
Please complete the 15 minute survey (https://t. (tw) ... more
Liked (1) Commented (0)Discussions
Odpovědí v diskuzi
1
- What strategies can be implemented to raise awareness about CHD2-related neurodevelopmental disorders in communities where resources are limited?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
- How can the Coalition to Cure CHD2 effectively collaborate with researchers and pharmaceutical companies to accelerate the development of treatments for CHD2-related disorders?
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Brooklyn Simmons
2 days ago
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Together, we can make a real impact in communities around the world. Help us bring hope and support.
So grateful for the Coalition to Cure CHD2 and all the incredible work you're doing for our kiddos! Together, we can make a difference! 💙🐾
Brooklyn Simmons
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Thank you for advocating for families impacted by CHD2. Your commitment to research and support means the world to us! Let's continue to spread awareness! 🌍✨
Brooklyn Simmons
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