COALITION TO CURE CHD2 INC
Fighting for our kiddos, and others, with CHD2-related neurodevelopmental disorders. Contact us: info@curechd2org The mission of Coalition to Cure CHD2 (CCC) is to improve the lives of those affected by CHD2-related disorders by funding research necessary for uncovering a cure.
ICO
854057370
X (Twitter)
586
Address
Dallas
Cure CHD2 Research Community Needs Assessment Spring 2024 In late March 2024 the Coalition to Cure CHD2 reached out to CHD2 families to fill out a community needs survey. We received 140 responses from 22 countries and 26 states in the US. Learn More Facebook Support Group Support group for parents caregivers family members of childrenyouthadults who are affected by a mutation deletion of the CHD2 gene. Learn More Getting Tested How to Get Diagnosed Getting diagnosed for CHD2 typically involves a combination of genetic testing a review of medical history a physical examination a neurological examination imaging studies and EEGs to support the diagnosis and understand the effects of the mutation.
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Fund Raising and/or Fund Distribution Category
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