Grant's Giants Pompe Awareness Nonprofit
To serve, educate, advocate, and support the Pompe community both locally and nationally.
ICO
921236152
Web
grantsgiants.com
Address
Indianapolis
Grant's Giants Pompe Nonprofit | Pompe disease Home About Impact Financial Assistance Donate More Grant39s Giants Pompe Nonprofit was formed after our son Grant was diagnosed with Infantile Pompe disease. It is said that the first year after a rare disease diagnosis is the hardest. After that first year we were determined to do something that would make a difference for families affected by this rare disease. Grant39s Giants will offer scholarships to pediatric Pompe families to attend the Pediatric Pompe Conference at Duke financially support advancements in research advocate for newborn screening and help with medical expenses for Pompe families.
Data & Similar organisations
Together, we can make a real impact in communities around the world. Help us bring hope and support.
Similar organisations
Charity for Children is a local organization that helps families with children suffering with various diseases and disorders.
Similar Organisations Worldwide
Award winning tax consultants, business advisers and Chartered Accountants in Essex, providing a comprehensive service to businesses and individuals.
THE BOPARAN CHARITABLE TRUST (uk)
RCN: 1129992 UK children’s charity helping those with disabilities and life-limiting conditions.
Charity based in Dorset supporting children and young people with Down's Syndrome and their families .
More from Indianapolis
Since 1893 Alpha Xi Delta has been a fraternal organization dedicated to the personal growth of women.
Category Alliance/Advocacy Organizations
A nonprofit organization raising awareness, promoting a culture of self-examination and helping survivors and caregivers navigate testicular cancer and unite via community.
Promoting organ, eye, tissue, and whole body donation among expectant families who have received a t.
Discussions
Odpovědí v diskuzi
1
1. What are some effective strategies for increasing awareness and support for rare diseases like Infantile Pompe within local communities?
View
Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
2. How can we better advocate for policy changes that ensure newborn screening for Pompe disease becomes a routine practice across all states?
View
Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
💙 So inspired by Grant's Giants and the incredible support you provide to families affected by Pompe disease! Together, we can make a difference! 🌟
Brooklyn Simmons
Product Manager
👏 Amazing work you're doing! Every little bit helps in raising awareness and supporting families. Let's spread the word about this important cause! 🦋
Brooklyn Simmons
Product Manager
Share your comment / review / opinion
Kendall Monroe
Product Manager
Join us and make a difference for the future!
I found my favorite volunteer opportunity thanks to Eduo!
Brooklyn Simmons
Product Manager
Finally, a clear and organized way to explore local and global charities.
Kendall Monroe
Product Manager
I stumbled on Eduo by accident and ended up spending hours learning about different charities across the world. It’s like a global map of goodness
Madison Carter
Product Manager
Eduo.org makes finding trustworthy nonprofits refreshingly simple.
Riley Bennett
Product Manager
The idea behind Eduo is genius — let the community build and improve profiles of nonprofit organizations worldwide. It creates trust and motivates engagement.
Sydney Parker
Product Manager
Finally, a platform that brings transparency and accessibility to the nonprofit world. Eduo makes it simple to see who’s doing meaningful work and how to get involved.
Jordan Blake
Product Manager
Clean, community-driven, and full of heart — love it.
Brooklyn Simmons
Product Manager
Transparent, useful, and beautifully designed.
Kendall Monroe
Product Manager
Sign Up
Please fill in your information. Everything is free, we might contact you with updates (but cancel any time!)
Sign in with Google