Riaan Research Initiative Inc
501(c)(3) non-profit organization hunting for a cure for rare and life-limiting genetic diseases that hurt children, starting with Cockayne syndrome. We are a 501(c)(3) non-profit dedicated to getting treatments developed for Cockayne Syndrome. Riaan Research Initiative is dedicated to promoting and furthering translational scientific research to advance treatments for severe and life-limiting genetic disorders starting with Cockayne Syndrome (CSA/ERCC8 mutations). We aim to identify and facilitate projects to improve the lives of patients suffering from genetic conditions lacking approved therapies. We strive to bring together disease and translational experts with each other and affected patients, fund novel and intelligent research projects aimed at accelerating and converting medical and technological advancements into treatment, and educate the public and medical community about relevant developments.
Founded
2021
216
X (Twitter)
468
Address
Oakland Gardens
Riaan Research Initiative — Cockayne Syndrome We have the tools to conquer genetic disease. This is the golden age of scientific discovery. Cockayne syndrome is a complex and lethal multisystem genetic disorder. It causes a failure in the bodys DNA transcription and repair processes and primarily involves mutations in genes CSA ERCC8 or CSB ERCC6.
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- 2025-05-14
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RT @RareDiseases: Tomorrow, #Congress is set to vote on legislation that would strip #Medicaid coverage and funding away from millions of r…. (tw)
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Odpovědí v diskuzi
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What innovative strategies can we implement to raise awareness and funding for research on Cockayne syndrome and other rare genetic disorders affecting children?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
How can collaborations between researchers, healthcare professionals, and NGOs like Riaan Research Initiative enhance the development of effective treatments for Cockayne syndrome?
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Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
💙 Thank you, Riaan Research Initiative, for your incredible work in advancing research for Cockayne Syndrome! Together, we can make a difference and bring hope to affected families. #HopeForCure
Brooklyn Simmons
Product Manager
🌟 It’s inspiring to see such dedication towards finding treatments for Cockayne Syndrome! Let’s support this vital mission and spread awareness about genetic disorders. Every share helps! #RiaanResearchInitiative
Brooklyn Simmons
Product Manager
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Clean, community-driven, and full of heart — love it.
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Simple interface, deep purpose. Eduo makes it easy for everyday people to become part of a global community doing good.
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Like Wikipedia for nonprofits — but even more inspiring.
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Eduo.org is my go-to platform for discovering nonprofit organizations that actually make a difference. The rankings, filters, and country-specific lists make it so easy to explore causes I care about. Brilliant initiative!
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I stumbled on Eduo by accident and ended up spending hours learning about different charities across the world. It’s like a global map of goodness
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Transparent, useful, and beautifully designed.
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