
Kabuki Syndrome Foundation
KSF is driving research for this rare disease through fundraising, knowledge-sharing, and collaboration. Join us to learn more and take action. Let’s find treatments faster - through fundraising, knowledge-sharing, and collaborating. The Kabuki Syndrome Foundation (KSF) is the only US based 501c3 nonprofit organization dedicated to advocating for the advancement of Kabuki syndrome research. Since its inception in 2017, the Kabuki Syndrome Foundation has strived to promote activities that support, enable, and accelerate research efforts that will advance therapeutic treatments for those affected by Kabuki Syndrome (KS). Our mission is to drive research efforts that show promise to treat, prevent or cure Kabuki Syndrome through fundraising, knowledge-sharing and collaborating with researchers around the world.
825401904
EIN
2018
Founded
NORTHBROOK, IL 60065 USA
Address
kabukisyndromefoundation.org
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kabukisyndrome
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News

FAQ ➡️ A person does not need to have ALL the possible symptoms of Kabuki syndrome to be diagnosed. The presence and severity of symptoms can vary widely from person to person. Genetic testing is the most informative path to diagnosis. Visit https://t.co/yfx4WPb3YC to learn more! https://t.co/rsQMVWhx0T (tw)

✨ Our 2024 Impact Report highlights the identification of 9 potential treatments, $700,000 in new KSF grants, and more: https://t.co/7J5P6CVCe8 ✨We look forward to continuing this collaborative momentum towards treatments in 2025! https://t.co/Iw1T05W3aR (tw)

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