Kabuki Syndrome Foundation

Follow Message Edit

KSF is driving research for this rare disease through fundraising, knowledge-sharing, and collaboration. Join us to learn more and take action. Let’s find treatments faster - through fundraising, knowledge-sharing, and collaborating. The Kabuki Syndrome Foundation (KSF) is the only US based 501c3 nonprofit organization dedicated to advocating for the advancement of Kabuki syndrome research. Since its inception in 2017, the Kabuki Syndrome Foundation has strived to promote activities that support, enable, and accelerate research efforts that will advance therapeutic treatments for those affected by Kabuki Syndrome (KS). Our mission is to drive research efforts that show promise to treat, prevent or cure Kabuki Syndrome through fundraising, knowledge-sharing and collaborating with researchers around the world.

Founded

2018

Facebook

1500

X (Twitter)

177

Address

NORTHBROOK

Address: PO BOX 214, NORTHBROOKWeb: Sign in to see organisation websiteFacebook: kabukisyndromefoundationX (Twitter): kabukisyndromeVolunteers: 6Revenue: 2062718ICO: 825401904

News & Updates XX

From Social media

News about from their social media (Facebook and X).

Collected information

Data about organisation

Specifically Named Diseases Category

Organisations with similar rank to Kabuki Syndrome Foundation in category Specifically Named Diseases

190. FIRE

A non-profit organization in Flagstaff, AZ working in Mongolia and Nepal, focused on community healt.

191. Unitarian Universalist Trauma Response Ministry Inc

Unitarian Universalist Trauma Response Ministry provides culturally sensitive spiritual care to survivors of mass disasters and other significant trauma.

192. Kabuki Syndrome Foundation

Let’s find treatments faster - through fundraising, knowledge-sharing, and collaborating.

194. Pmd Foundation A New Jersey Non Profit Corporation

The PMD Foundation is a 501(c)3 non-profit organization formed to serve three distinct interest groups as they relate to Pelizaeus-Merzbacher Disease: The Children and Families, the General Public, the Researchers and Clinicians.

More from Specifically Named Diseases

NORTHBROOK

Organisations from Kabuki Syndrome Foundation

26. AMERICAN UKRAINIAN MEDICAL FOUNDATION

AUMF is a 501(c)(3) public charity incorporated in the State of Michigan in 1996.

27. WESTMOOR PARENT TEACHER ORGANIZATIO

District Overview Northbrook School District 28 is located approximately 25 miles north of downtown Chicago, and about four miles west of Lake Michigan.

28. Kabuki Syndrome Foundation

Let’s find treatments faster - through fundraising, knowledge-sharing, and collaborating.

29. Illinois Congress of Parents Teachers

Welcome to the official Facebook page for Northbrook School District 27.

30. Rebecca Lynn Cutler Legacy of Life Foundation (Rebecca's Dream)

The Rebecca Lynn Cutler Legacy of Life Foundation's mission is to promote awareness and compassionate understanding of Depression and Bipolar Disorder as real diseases.

More from NORTHBROOK

Interesting nearby

Interesting organisations close by to residence of Kabuki Syndrome Foundation

Tourette Association of America Inc

Established over 50 years ago, the TAA is the only national organization that serves the Tourette Syndrome & Tic Disorder community through awareness, research, and support.

VOR

VOR is a national organization that advocates for high quality care and human rights for people with.

Cure SMA

Cure SMA is dedicated to the treatment and cure of spinal muscular atrophy (SMA).

More Interesting nearby

Similar social media (1677)

Organisations with similar social media impact to Kabuki Syndrome Foundation

136102. Boy Scouts of America Coronado Area Council

Preparing Young People For Life in 32 Counties of North Central and North West Kansas.

136103. Charity for Children Inc

Charity for Children is a local organization that helps families with children suffering with various diseases and disorders.

136104. Kabuki Syndrome Foundation

Let’s find treatments faster - through fundraising, knowledge-sharing, and collaborating.

136105. Jordanian American Society of Houston

JASH is a non-profit organization, founded in 2019, aiming to provide local Jordanians in Houston with support and services, while celebrating the rich culture of our country.

136106. Autistic Womens Alliance

AWA aids autistic individuals of Underrepresented Genders in the workplace https://linktr.

Similar social media
Join us

Join us and make a difference for the future!

Great for discovering hidden-gem organizations near me.

Brooklyn Simmons
William

The idea behind Eduo is genius — let the community build and improve profiles of nonprofit organizations worldwide. It creates trust and motivates engagement.

Brooklyn Simmons
Michelle

I found my favorite volunteer opportunity thanks to Eduo!

Brooklyn Simmons
Jessica

A brilliant resource for anyone who wants to do good more effectively.

Brooklyn Simmons
Eve

Great for discovering hidden-gem organizations near me.

Brooklyn Simmons
Eve

As a teacher, I use Eduo in class to show students how civic engagement works. It’s inspiring and educational. Highly recommend for schools and community groups.

Brooklyn Simmons
Stacy
Sign Up

Please fill in your information. Everything is free, we might contact you with updates (but cancel any time!)

Sign in with Google
Or
Collected information

Good News

Andrea 2025-10-24

Inspiring to see Houston neighbors creating solar-powered 'hub homes' to build community resilience during power outages—proof that together we can light up even the darkest nights! #CommunitySpirit #Sustainability

Lacking community resilience centers, Houston neighbors opt for solar-powered 'hub homes'

Barchart.com

Like Comment
Terka 2025-10-24

"Proud to see monuments celebrating incredible women like Rosa Parks and Helen Keller being unveiled at the Alabama Capitol! 🌟✨ A powerful reminder of the impact women have made in history. Let's continue to honor and uplift female voices everywhere! #WomenInHistory #Empowerment"

Rosa Parks and Helen Keller statues will be unveiled at the Alabama Capitol - The Boston Globe

The Boston Globe

Like Comment
Kačka 2025-10-24

"Thrilled to hear that statues of Rosa Parks and Helen Keller will be unveiled at the Alabama Capitol, honoring two incredible women who inspired justice and change for all! #Inspiration #SocialJustice"

Rosa Parks and Helen Keller statues will be unveiled at the Alabama Capitol

AP NEWS

Like Comment