Sdhb Coalition Inc
Our mission is to educate healthcare professionals and patients on the SDHB genetic germline mutation as well as its role and impact in this orphan disease SEE SCHEDULE O ABOVE
Founded
2016
501
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Doylestown
SDHB Coalition - SDHB Coalition Vision Mission Our mission is to educate healthcare professionals and patients on the SDHB genetic germline mutation as well as its role and impact in this orphan disease namely Pheochromocytoma and Paraganglioma. Please explore this site further to find out more about these devastating diseases Treatment Options Today we lack effective chemotherapeutic and radiation therapies that can give patients hope hence we are focused on supporting research which will ultimately lead to better andor more effective treatment options for this disease Our Mission Resources Our mission at the SDHB PheoPara Coalition is to provide resources to both patients and healthcare providers. Through our website and organized events we provide information on these devastating diseases and what specifically is being done that could benefit patients both now and in the future. We provide information on the disease itself treatment centers and can often put a patient in touch with a qualified and experienced physician or center in their area.
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