
881358619
Winthrop, MA 02152 USA
connectivetissuecoalition.org
4.5
Winthrop
About the organization
- 857, H12 -
Home About Us Resources Get Involved Contact Us More Connective TissueCoalition Empowering Progress Inspiring Hope EhlersDanlosSyndromes MarfanSyndrome LoeysDietzSyndrome MISSION The Connective Tissue Coalition CTC drives research raises awareness and provides resources for individuals affected by EhlersDanlos Marfan and LoeysDietz Syndromes. With a research grant program and providing seed funding to qualified researchers CTC seeks to initiate and supportrelevant vetted research projectsin these critical areas. Our programs and initiatives prioritize advancing research and accurate diagnosis and new treatments. Combining the expertise of our most esteemed scientists medical professionals advocates patients and familieswill make those longnecessary breakthroughs and achieve what was once unthinkable a cure.
Fund Raising and/or Fund Distribution