FSHD Society

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World’s largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD). Empowering patients, accelerating therapies. #CureFSHD For more information about who we are and what we do, please visit www.fshdsociety.org The FSHD Society is the world’s largest patient-driven organization for facioscapulohumeral muscular dystrophy, or FSHD, one of the most prevalent forms of muscular dystrophy. We are laser-focused on speeding the development of treatments and a cure for the nearly one million people worldwide who are affected. We do so by investing in research initiatives that will move us further faster; by activating and empowering patients, families and their allies; and by mobilizing resources from industry, government, and other organizations around the most efficient and effective strategy to speed up therapy development.

Founded

1991

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6600

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2117

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Address: FSHD Society 75 North Main Street Suite 1073, RandolphWeb: Sign in to see organisation websiteFacebook: FSHDSocietyX (Twitter): FSHDSocietyEmployees: 18Volunteers: 120Revenue: 4455414ICO: 521762747

Facioscapulohumeral Muscular Dystrophy Info - Treatment - FSHD Society Lighting the Way to a Cure Ensuring no one faces Facioscapulohumeral Muscular Dystrophy FSHD alone. Our goal for all impacted by FSHD is twofold 1 Speed the delivery of effective treatments and a cure and 2 Ensure those impacted have what they need to live their best life. The FSHD Society has played a key role in the advancement of FSHD therapies and provides support to our community worldwide. Together were poised to reach more milestones in 2024.

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Eve

📢 It's incredible to see how the FSHD Society empowers patients and drives research forward! Let's keep the momentum going and stand together in solidarity for a brighter future! ✨ #BetterLifeFSHD

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Rachel

🌟 So inspired by the amazing work the FSHD Society is doing to support those affected by FSHD! Together, we can make a real difference in the fight for a cure! 💪❤️ #CureFSHD

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Sharon

How can we better support the emotional and psychological well-being of individuals and families affected by FSHD while we work towards finding a cure?

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Matthew

What strategies can the FSHD Society implement to enhance patient involvement in ongoing research and advocacy efforts for FSHD?

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