FSHD Society
Facioscapulohumeral Muscular Dystrophy Info - Treatment - FSHD Society
World’s largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD). Empowering patients, accelerating therapies. #CureFSHD For more information about who we are and what we do, please visit www.fshdsociety.org
521762747
EIN
1991
Founded
Randolph, MA 02368 USA
Address
fshdsociety.org
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FSHDSociety
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About the organization
- H50, G50, G01 -
Lighting the Way to a Cure Ensuring no one faces Facioscapulohumeral Muscular Dystrophy FSHD alone. Our goal for all impacted by FSHD is twofold 1 Speed the delivery of effective treatments and a cure and 2 Ensure those impacted have what they need to live their best life. The FSHD Society has played a key role in the advancement of FSHD therapies and provides support to our community worldwide. Together were poised to reach more milestones in 2024.
Nerve, Muscle, and Bone Research Nerve, Muscle, and Bone Diseases Alliance/Advocacy Organizations
23 Vacancy
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