FSHD Society
World’s largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD). Empowering patients, accelerating therapies. #CureFSHD For more information about who we are and what we do, please visit www.fshdsociety.org The FSHD Society is the world’s largest patient-driven organization for facioscapulohumeral muscular dystrophy, or FSHD, one of the most prevalent forms of muscular dystrophy. We are laser-focused on speeding the development of treatments and a cure for the nearly one million people worldwide who are affected. We do so by investing in research initiatives that will move us further faster; by activating and empowering patients, families and their allies; and by mobilizing resources from industry, government, and other organizations around the most efficient and effective strategy to speed up therapy development.
Founded
1991
6600
X (Twitter)
2117
Traffic
1049521
Facioscapulohumeral Muscular Dystrophy Info - Treatment - FSHD Society Lighting the Way to a Cure Ensuring no one faces Facioscapulohumeral Muscular Dystrophy FSHD alone. Our goal for all impacted by FSHD is twofold 1 Speed the delivery of effective treatments and a cure and 2 Ensure those impacted have what they need to live their best life. The FSHD Society has played a key role in the advancement of FSHD therapies and provides support to our community worldwide. Together were poised to reach more milestones in 2024.
From Social media
News about from their social media (Facebook and X).
Data about organisation
Nerve, Muscle, and Bone Research Category
Organisations with similar rank to FSHD Society in category Nerve, Muscle, and Bone Research
13. American Society for Bone and Mineral Research
The American Society for Bone and Mineral Research (www.
For more information about who we are and what we do, please visit www.
16. Myotonic Dystrophy Foundation
We envision a world with treatments and a cure for myotonic dystrophy (DM).
17. Neurofibromatosis Incorporated Northeast
NF Northeast is a non-profit org incorporated in 1988 that advocates for those with neurofibromatosis.
Nerve, Muscle, and Bone Diseases Category
Organisations with similar rank to FSHD Society in category Nerve, Muscle, and Bone Diseases
39. FOUNDATION OF ORTHOPEDICS AND COMPLEX SPINE INC
To provide access to optimum orthopedic care and improve the quality of life of patients in need throughout Africa and other parts of the world.
For more information about who we are and what we do, please visit www.
41. Myotonic Dystrophy Foundation
We envision a world with treatments and a cure for myotonic dystrophy (DM).
Empowering families.
Alliance/Advocacy Organizations Category
Organisations with similar rank to FSHD Society in category Alliance/Advocacy Organizations
We deliver a full range of education, awareness and support around fetal alcohol spectrum disorders.
Misfit Toys Car Club is a registered #Charity and 100% #NonProfit organization.
For more information about who we are and what we do, please visit www.
Path2Parenthood (P2P) is an inclusive organization committed to helping people create their families of choice by providing leading-edge outreach programs.
102. NATIONAL SCOLIOSIS FOUNDATION INC
Scoliosis affects 2-3% of the population, or one out of every forty children, and there is no cure.
Randolph
Organisations from FSHD Society
Care for the individual.
May Institute is a nonprofit organization that is a national leader in the field of applied behavior analysis, serving autistic individuals & those with other developmental disabilities, brain injury & neurobehavioral disorders, & other special needs.
For more information about who we are and what we do, please visit www.
13. GLOBAL JUSTICE ECOLOGY PROJECT INC
More on Global Justice Ecology Project at https://globaljusticeecology.
Similar organisations
Similar organisations to FSHD Society based on mission, location, activites.
Empowering families.
Juvenile Diabetes Cure Alliance
We are a 501(c)(3) nonprofit dedicated to achieving a type 1 diabetes Practical Cure within 15 years Support the fight for a cure: https://oclp.
Joshuas Future of Promises Inc
Joshua’s Future Of Promises is a non-profit organization set up by Joshua Scoble’s family.
Similar Organisations Worldwide
Organisations in the world similar to FSHD Society.
DANIEL FERGUSON LGMD FOUNDATION LTD (au)
The Daniel Ferguson LGMD Foundation is a charitable organisation established to improve the quality of life of people living with Limb Girdle Muscular Dystrophy.
MUSCULAR DYSTROPHY GROUP OF GREAT BRITAIN AND NORTHERN IRELAND (uk)
We’re here for everyone living with and affected by muscle wasting and weakening conditions.
THE MUSCLE HELP FOUNDATION (uk)
Muscle Dreams change lives & give hope for children & young people in the UK living with Muscular Dystrophy.
Duchenne UK has one clear aim – to end Duchenne, a devastating muscle-wasting disease.
Interesting nearby
Interesting organisations close by to residence of FSHD Society
THE ALLIANCE FOR THE PRUDENT USE OF ANTIBIOTICS INC
The Alliance for the Prudent Use of Antibiotics (APUA) is a non-profit organisation founded in 1981.
NATIONAL SCOLIOSIS FOUNDATION INC
Scoliosis affects 2-3% of the population, or one out of every forty children, and there is no cure.
Powerful Patient, based in Brookline, Massachusetts, is a nonprofit organization dedicated to advocacy for patients with complex medical issues or disabilities.
Similar social media (8717)
Organisations with similar social media impact to FSHD Society
Secular Woman is a national organization focused exclusively on amplifying the voice, presence, and influence of non-religious women.
61524. International Association of Crime Analysts Inc
Founded in 1990, IACA is an all-volunteer, 501(c)3 nonprofit dedicated to promoting crime analysis.
For more information about who we are and what we do, please visit www.
61526. Community Roots Collective Inc
"Where families come to grow.
Healthy spirits, minds and bodies for all.
Similar traffic
Organisations with similar web traffic to FSHD Society
Bethel offers academic programs that challenge the mind & equip the whole person for lifelong service.
For more information about who we are and what we do, please visit www.
Join us and make a difference for the future!
What I appreciate most about Eduo is its neutrality and inclusivity. It doesn't push any agenda — just provides tools for people to explore and support what matters to them.
Patrick
As a teacher, I use Eduo in class to show students how civic engagement works. It’s inspiring and educational. Highly recommend for schools and community groups.
Kira
Like Wikipedia for nonprofits — but even more inspiring.
Paul
Eduo connects you to causes that actually matter to you.
Eve
Eduo.org helped me discover a small local organization doing amazing environmental work that I would’ve never found otherwise. It’s a hidden gem for socially conscious people.
Stacy
I stumbled on Eduo by accident and ended up spending hours learning about different charities across the world. It’s like a global map of goodness
Eve
Sign Up
Please fill in your information. Everything is free, we might contact you with updates (but cancel any time!)
Sign in with GoogleOr
Good News
Sára
2025-10-28
our family. Excited to see them embrace new friendships and grow in their faith! Education is a journey, and I'm grateful for the support we found along the way. Let's inspire our kids to lead with love and compassion! ❤️📚 #PositiveChange #CommunitySupport
Training Kids in Jesus' Ways -- Not Neutrality or Nationalism
Patheos - Seek. Understand.
Like Comment
Lenna
2025-10-28
"Exciting times for retail! 🌟 As we embrace a future that prioritizes human connection, it’s inspiring to see brands focusing on creating memorable experiences for shoppers. Let's keep pushing for soul in every interaction! #RetailWithSoul #PositiveChange #Eduo"
Why does the future of retail need more soul?
The Drum
Like Comment