FSHD Society
World’s largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD). Empowering patients, accelerating therapies. #CureFSHD For more information about who we are and what we do, please visit www.fshdsociety.org The FSHD Society is the world’s largest patient-driven organization for facioscapulohumeral muscular dystrophy, or FSHD, one of the most prevalent forms of muscular dystrophy. We are laser-focused on speeding the development of treatments and a cure for the nearly one million people worldwide who are affected. We do so by investing in research initiatives that will move us further faster; by activating and empowering patients, families and their allies; and by mobilizing resources from industry, government, and other organizations around the most efficient and effective strategy to speed up therapy development.
Founded
1991
6600
X (Twitter)
2117
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1049521
Facioscapulohumeral Muscular Dystrophy Info - Treatment - FSHD Society Lighting the Way to a Cure Ensuring no one faces Facioscapulohumeral Muscular Dystrophy FSHD alone. Our goal for all impacted by FSHD is twofold 1 Speed the delivery of effective treatments and a cure and 2 Ensure those impacted have what they need to live their best life. The FSHD Society has played a key role in the advancement of FSHD therapies and provides support to our community worldwide. Together were poised to reach more milestones in 2024.
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Nerve, Muscle, and Bone Research Category
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Nerve, Muscle, and Bone Diseases Category
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39. FOUNDATION OF ORTHOPEDICS AND COMPLEX SPINE INC
To provide access to optimum orthopedic care and improve the quality of life of patients in need throughout Africa and other parts of the world.
For more information about who we are and what we do, please visit www.
41. Myotonic Dystrophy Foundation
We envision a world with treatments and a cure for myotonic dystrophy (DM).
Empowering families.
Alliance/Advocacy Organizations Category
Organisations with similar rank to FSHD Society in category Alliance/Advocacy Organizations
We deliver a full range of education, awareness and support around fetal alcohol spectrum disorders.
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For more information about who we are and what we do, please visit www.
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102. NATIONAL SCOLIOSIS FOUNDATION INC
Scoliosis affects 2-3% of the population, or one out of every forty children, and there is no cure.
Randolph
Organisations from FSHD Society
Care for the individual.
May Institute is a nonprofit organization that is a national leader in the field of applied behavior analysis, serving autistic individuals & those with other developmental disabilities, brain injury & neurobehavioral disorders, & other special needs.
For more information about who we are and what we do, please visit www.
13. GLOBAL JUSTICE ECOLOGY PROJECT INC
More on Global Justice Ecology Project at https://globaljusticeecology.
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Empowering families.
Juvenile Diabetes Cure Alliance
We are a 501(c)(3) nonprofit dedicated to achieving a type 1 diabetes Practical Cure within 15 years Support the fight for a cure: https://oclp.
Joshuas Future of Promises Inc
Joshua’s Future Of Promises is a non-profit organization set up by Joshua Scoble’s family.
Similar Organisations Worldwide
Organisations in the world similar to FSHD Society.
Duchenne UK has one clear aim – to end Duchenne, a devastating muscle-wasting disease.
DANIEL FERGUSON LGMD FOUNDATION LTD (au)
The Daniel Ferguson LGMD Foundation is a charitable organisation established to improve the quality of life of people living with Limb Girdle Muscular Dystrophy.
THE MUSCLE HELP FOUNDATION (uk)
Muscle Dreams change lives & give hope for children & young people in the UK living with Muscular Dystrophy.
MUSCULAR DYSTROPHY GROUP OF GREAT BRITAIN AND NORTHERN IRELAND (uk)
We’re here for everyone living with and affected by muscle wasting and weakening conditions.
Interesting nearby
Interesting organisations close by to residence of FSHD Society
THE ALLIANCE FOR THE PRUDENT USE OF ANTIBIOTICS INC
The Alliance for the Prudent Use of Antibiotics (APUA) is a non-profit organisation founded in 1981.
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Scoliosis affects 2-3% of the population, or one out of every forty children, and there is no cure.
Powerful Patient, based in Brookline, Massachusetts, is a nonprofit organization dedicated to advocacy for patients with complex medical issues or disabilities.
Similar social media (8717)
Organisations with similar social media impact to FSHD Society
Secular Woman is a national organization focused exclusively on amplifying the voice, presence, and influence of non-religious women.
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Founded in 1990, IACA is an all-volunteer, 501(c)3 nonprofit dedicated to promoting crime analysis.
For more information about who we are and what we do, please visit www.
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"Where families come to grow.
Healthy spirits, minds and bodies for all.
Similar traffic
Organisations with similar web traffic to FSHD Society
Bethel offers academic programs that challenge the mind & equip the whole person for lifelong service.
For more information about who we are and what we do, please visit www.
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