GORLIN SYNDROME ALLIANCE

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Empowering those with Gorlin Syndrome to live rich, full, happy lives. The mission of the Gorlin Syndrome Alliance is to thoughtfully support, comprehensively educate, and aggressively seek the best treatments and a cure for those affected by Gorlin syndrome.

Founded

2000

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1600

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Reading

Address: PO Box 4, ReadingWeb: Sign in to see organisation websiteFacebook: GorlinSyndromeAllianceEmployees: 3Volunteers: 12Revenue: 307070ICO: 341915691

Gorlin Syndrome Alliance - Gorlin Syndrome Alliance Get updates on Gorlin syndrome research managing symptoms and moreContact UsDonate Now. Gorlin Syndrome Alliance News from the Gorlin Syndrome Community Sunscreens and Photoprotection Gabros Nessel Zito. 2023 admin20240515T2114050000May 15 2024 The efficacy and safety of sunscreen use for the prevention of skin cancer Sander et al 2020 admin20240515T2113290000May 15 2024 Sunscreen Facts from Skin Cancer Foundation admin20240515T2112490000May 15 2024 What is Gorlin Syndrome. Research Learn more about our work to find better treatments and a cure for Gorlin syndrome Living Well Get the info you need to best manage the signs and symptoms of Gorlin syndrome Gorlin Syndrome and Children Help your child with Gorlin syndrome grow and thrive through all their ages and stages Signs and Symptoms Learn about the different signs and symptoms of Gorlin syndrome and how they may affect you Get Connected Be a part of our active community of people affected by Gorlin syndrome and those who love them Get Informed We teamed up with leading physicians researchers and patient advocates to bring you a wealth of resources for Gorlin syndrome Get Support Learn from others with Gorlin syndrome at one of our health events or by joining our online support community Get Involved Help us raise awareness and funds to support Gorlin syndrome research Gorlin Syndrome Alliance Newsletter Signup .

News & Updates XX

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News about from their social media (Facebook and X).

Matthew

1. What are the most effective strategies for raising awareness about Gorlin Syndrome in local communities and schools?

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Joanna

So inspired by the work the Gorlin Syndrome Alliance is doing! Every donation helps in the journey towards better treatments and more empowered lives! πŸ’™πŸ™

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Sharon

2. How can we improve support networks for families affected by Gorlin Syndrome to ensure they have access to resources and information?

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Robin

Love seeing this community come together! Let's continue to spread awareness and support for those living with Gorlin Syndrome. Together, we can make a difference! πŸ’ͺ🌟

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