We've added an optional activity to the conference schedule. We'll be making our own Friendship Bracelets! Join us Thursday evening in the ballroom from 6:00 PM to 7:30 PM. We'll provide instructions and supplies enough to make four bracelets. The fee is $15 per person. Please pre-register so we can prepare the supplies in advance. On-site registration may not be available. We are looking for 3-5 volunteers to help with the activity. If you are interested and registered for the Conference, please email becky@turnersyndrome.org You can register for the activity here: https://turnersyndrome.app.neoncrm.com/nx/portal/neonevents/events?path=%2Fportal%2Fevents%2F18956 (fb)

What if your story could inspire a girl or woman with Turner syndrome who is going through a difficult time? Or, what if the story about your child's triumphs and challenges turned out to be just the inspiration a mother and father with a newly diagnosed child needed at just the right time? Shared stories from people with TS, parents, grandparents, siblings, and friends help and uplift the entire TS community. We recognize not every TS story is a positive one - those stories are important and have a big impact, too. Sometimes it's in the shared struggles that we find the strongest bonds. Please take a moment to share your story and a photo. In order for TSSUS to publish your story on the TSSUS blog, your contact info must be completed in full. Please aim to write at least 3-5 paragraphs and to share about you whole life, not just the TS part 🦋🧡 You can submit your story here: (fb)