The RYR-1 Foundation
Home - ryr1.org
471094057
2014
Pittsburgh, PA 15243 USA
ryr1.org
RYR1foundation
ryr1foundation
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News
☀️ Summer is here—and so is our June Newsletter! ☀️ Catch up on the latest from The RYR-1 Foundation and get important updates you won't want to miss. 📰 Read it here: https://ryr1.org/newsletters/june-2025-newsletter 🛑 Reminder: Registration for the 2025 Family Conference closes June 30—don’t wait! 📅 Register now: https://bit.ly/42srk0N #strengthinnumbersryr1 #ryr1rd #ryr1 #ryr1community (fb)
🔬 Sponsor the 2025 RYR-1-RD Research Workshop 🔬 Support progress, connect with global experts & patients, and gain meaningful recognition—just like Eagle Pharmaceuticals! Become a sponsor of the 2025 RYR-1-Related Diseases Patient-Led International Research Workshop: Novel Perspectives, Treatments & Interventions. 💡 Why sponsor? ✔️ Directly support cutting-edge RYR-1-RD research ✔️ Engage with scientists, providers, patients & families ✔️ Showcase your commitment to rare disease innovation & corporate social responsibility 🤝 Learn more about sponsorship opportunities: https://ryr1.org/wp-content/uploads/2024/09/Research-Workshop-Sponsorships-2025.pdf #strengthinnumbersryr1 #ryr1rd #ryr1 #ryr1community (fb)
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About the organization
- 724, H20, G40, S01, MDA -
Who We Are The RYR1 Foundation is a nonprofit 501c3 public charity which was started by members of the Goldberg Family who have been affected by an RYR1related disease. Currently there is no other organization that exists solely to advocate for and serve the needs of patients and families affected by RYR1Related Diseases RYR1RD. The goal of The RYR1 Foundation is to fill this muchneeded void. Who We Help The RYR1 Foundation works closely with individuals and families affected by RYR1RD researchers biotech and pharmaceutical industries and healthcare providers from across the globe to facilitate communication in the field of RYR1RD fund research advance effective therapies and optimize standards of care to enhance the quality of life in affected individuals.
Birth Defects, Genetic Diseases Research Diseases of Specific Organs Alliance/Advocacy Organizations
