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Who We Are The RYR1 Foundation is a nonprofit 501c3 public charity which was started by members of the Goldberg Family who have been affected by an RYR1related disease. Currently there is no other organization that exists solely to advocate for and serve the needs of patients and families affected by RYR1Related Diseases RYR1RD. The goal of The RYR1 Foundation is to fill this muchneeded void. Who We Help The RYR1 Foundation works closely with individuals and families affected by RYR1RD researchers biotech and pharmaceutical industries and healthcare providers from across the globe to facilitate communication in the field of RYR1RD fund research advance effective therapies and optimize standards of care to enhance the quality of life in affected individuals.