Craniosynostosis & Parents Support

Craniosynostosis & Parents Support, also known as CAPPS (Craniosynostosis and Positional Plagiocephaly Support, Inc.), is a US nonprofit organization dedicated to supporting families of children with craniosynostosis, a condition where one or more of the bones of a baby's skull fuse prematurely. This organization provides resources and support to help families navigate the challenges associated with craniosynostosis and related conditions.

History

CAPPS was founded in a period when internet resources were limited, and its inception marked an important step in connecting families facing similar challenges. Over the years, the organization has evolved, leveraging digital platforms to expand its reach and provide more comprehensive support.

Mission and Activities

The mission of CAPPS focuses on empowering parents and caregivers of children with craniosynostosis by offering various forms of support. This includes online forums, newsletters, and hospital care packages designed to help families during critical times. The organization aims to provide a network where families can share experiences, ask questions, and find comfort in a community facing similar challenges.

Impact

By providing a structured support framework, CAPPS helps families cope with the medical, emotional, and social aspects of craniosynostosis. The organization's efforts contribute to raising awareness about craniosynostosis and related conditions, ensuring that families are well-equipped to handle the needs of their children effectively.

Possible Confusion with Similar Entities

It is important to distinguish CAPPS from other organizations that support craniofacial conditions, such as the Children's Craniofacial Association and FACES: The National Craniofacial Association. Each of these organizations plays a distinct role in supporting families affected by various craniofacial anomalies.