
ALVEOLAR CAPILLARY DYSPLASIA ASSOCIATION
This ACDA site is the social media outreach for parents of ACD patients during any treatment phase and support system for those experiencing child loss. To find the cause of and cure for Alveolar Capillary Dysplasia with misalignment of the pulmonary veins (ACDMPV), a rare infant lung disorder.

ICO
462915711
1600
Web
Sign in to see organisation website
Address
Huntersville
ACD Association ACD Association Menu Rare Disease Day February 282025 Rare Disease Day is an international advocacy day to bring widespread recognition of rare diseases. Participate in Research A primary goal of the ACDA is to promote and monitor ACDMPV research by medical professionals around the globe. ACDA Digital QuiltProject In October 2024 the ACDA created a digital quilt project with each square representing a child affected by ACDMPV. Click to view in detail.
From Social media
News about from their social media (Facebook and X).
Data about organisation
Alliance/Advocacy Organizations Category
Organisations with similar rank to ALVEOLAR CAPILLARY DYSPLASIA ASSOCIATION in category Alliance/Advocacy Organizations

The Friends of Minidoka is a non-profit organization, which honors and preserves the incarceration experience at Minidoka and its legacy.

445. The Arc of Cape May County
The Arc of Cape May County, Inc.

446. ALVEOLAR CAPILLARY DYSPLASIA ASSOCIATION
This ACDA site is the social media outreach for parents of ACD patients during any treatment phase and support system for those experiencing child loss.

447. U S Solidarity Economy Network Inc
The mission of the U.

Welcome to One Good Deed ~ a non-profit, community based group of volunteers making a difference.
Huntersville
Organisations from ALVEOLAR CAPILLARY DYSPLASIA ASSOCIATION

Welcome to the page of Forged Brotherhood MC.

14. Torrence Creek Elementary PTA
Mission Statement: The Torrence Creek Elementary PTA consists of teachers, administrators, parents,.

15. ALVEOLAR CAPILLARY DYSPLASIA ASSOCIATION
This ACDA site is the social media outreach for parents of ACD patients during any treatment phase and support system for those experiencing child loss.

16. Phoenix Montessori Academy
A Private Montessori school for children ages 18 months to high school.

Volunteer.
Similar organisations
Similar organisations to ALVEOLAR CAPILLARY DYSPLASIA ASSOCIATION based on mission, location, activites.

TRACHEO-BRONCHO-MALACIA AIRWAY FOUNDATION/CureTBM
Tracheomalacia, Bronchomalacia, Tracheobronchomalacia, & Airway Collapse non-profit supporting kids and adults.

Substance Abuse and Addiction Recovery Alliance of Virginia (SAARA).

Family Access Fighting for Childrens Rights
Children are NOT pawns or property.

We work with the unhoused and those in crisis to reach stability.

BLUEGRASS PARKINSON'S ALLIANCE
Seeking to provide empowerment & encouragement for persons with Parkinson’s, their care partners, and families in Lexington and surrounding areas.
Similar Organisations Worldwide
Organisations in the world similar to ALVEOLAR CAPILLARY DYSPLASIA ASSOCIATION.

CANADIAN ORGANIZATION FOR RARE DISORDERS (CORD) (ca)
CORD is Canada's national network for organizations representing all those with rare disorders.

Rare Voices Australia Ltd (au)
RVA is Australia’s national peak body for Australians living with a rare disease.

Alport Foundation Of Australia (au)
A non-profit organisation that aims to support patients and families affected by Alport Syndrome, a genetic kidney disease.

RARE AUTOINFLAMMATORY CONDITIONS COMMUNITY - UK (RACC - UK) (uk)
RACC-UK is the only UK registered patient-led Charity supporting Autoinflammatory conditions.
Interesting nearby
Interesting organisations close by to residence of ALVEOLAR CAPILLARY DYSPLASIA ASSOCIATION

We work tirelessley to create a more equitable, connected, and healthy community by inspiring responsible growth and transportation choices.

ALVEOLAR CAPILLARY DYSPLASIA ASSOCIATION
This ACDA site is the social media outreach for parents of ACD patients during any treatment phase and support system for those experiencing child loss.
Similar social media (1600)
Organisations with similar social media impact to ALVEOLAR CAPILLARY DYSPLASIA ASSOCIATION

138170. Fire Suppression Systems Association
The Fire Suppression Systems Association (FSSA) is a not-for-profit worldwide professional trade association.

138171. MO Blues Association Inc
MO Blues is a blues society located in Mid-Missouri & an affiliate member of The Blues Foundation (Memphis, TN - www.

138172. ALVEOLAR CAPILLARY DYSPLASIA ASSOCIATION
This ACDA site is the social media outreach for parents of ACD patients during any treatment phase and support system for those experiencing child loss.

138173. Junior League of Cedar Rapids Inc
JLCR develops the potential of individuals in Eastern Iowa through training, service, and leadership.

138174. Tom Savage Quarter Note Foundation Inc
The foundation’s main purpose is to celebrate the life and legacy of our friend, brother, teacher, an.
Join us and make a difference for the future!
Sign Up
Please fill in your information. Everything is free, we might contact you with updates (but cancel any time!)
Sign in with GoogleOr
Good News

"🌍 Exciting news from Uganda! 🦍 Tourism in Bwindi Impenetrable National Park is helping to protect mountain gorillas and provide valuable insights into their behavior. Investing in wildlife ensures a brighter future for these incredible creatures! #Conservation #TourismForGood 🌿"
Officials deploy unexpected strategy to combat poaching: 'We get some money from these gorillas we could kill'
Yahoo
Like Comment
"Great to see countries like India making strides towards sustainable mobility! 🌍🚗 Let's take inspiration from their multi-fuel approach and push for cleaner, greener transportation solutions here in the Czech Republic too! #SustainableFuture #PositiveChange"
India's EV growth accelerates with multi-fuel push: Report
Social News XYZ
Like Comment
Exciting research sheds light on how psychedelics can transform our understanding of time and consciousness, opening new avenues for mental health and well-being! #Psychedelics #MentalHealth #PositiveChange
How psychedelics profoundly reshape the perception of time and consciousness
News-Medical.net
Like Comment