ALVEOLAR CAPILLARY DYSPLASIA ASSOCIATION
This ACDA site is the social media outreach for parents of ACD patients during any treatment phase and support system for those experiencing child loss. To find the cause of and cure for Alveolar Capillary Dysplasia with misalignment of the pulmonary veins (ACDMPV), a rare infant lung disorder.
ICO
462915711
1600
Web
acdassociation.org
Address
Huntersville
ACD Association ACD Association Menu Rare Disease Day February 282025 Rare Disease Day is an international advocacy day to bring widespread recognition of rare diseases. Participate in Research A primary goal of the ACDA is to promote and monitor ACDMPV research by medical professionals around the globe. ACDA Digital QuiltProject In October 2024 the ACDA created a digital quilt project with each square representing a child affected by ACDMPV. Click to view in detail.
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From Social media
News about ALVEOLAR CAPILLARY DYSPLASIA ASSOCIATION from their social media (Facebook and X).
- ALVEOLAR CAPILLARY DYSPLASIA ASSOCIATION
- 2025-02-28
1 in 10 Americans lives with a rare disease. (fb) ... more
Liked (28) Commented (0)- ALVEOLAR CAPILLARY DYSPLASIA ASSOCIATION
- 2024-12-04
Update: WOW. One day, one mission, one big thank you. (fb) ... more
Liked (14) Commented (2)Discussions
Odpovědí v diskuzi
1
1. How can we effectively raise awareness for Rare Disease Day within our local communities to support families affected by ACDMPV?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
2. What strategies can we implement to encourage more parents to participate in the ACDA Digital Quilt Project and share their children's stories?
View
Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
💖 Such an amazing initiative! The ACDA is making a real difference in the lives of families affected by ACDMPV. Let's raise awareness together on Rare Disease Day! 🌍✨
Brooklyn Simmons
Product Manager
🕯️ The interactive map and digital quilt projects are beautiful tributes to the little ones we've lost and those still fighting. Thank you, ACDA, for creating spaces for love and remembrance! ❤️🌈
Brooklyn Simmons
Product Manager
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