Emily's Entourage
Accelerating lifesaving research and drug development for the final 10% of people with #cysticfibrosis that don't benefit from mutation-targeted therapies. Emily's Entourage is an innovative 501(c)3 organization that accelerates research for individuals in the final 10% of the cystic fibrosis population that do not benefit from existing mutation-targeted therapies. Emilys Entourage speeds lifesaving research and drug development for individuals in the final 10% of the cystic fibrosis (CF) community that do not benefit from currently available mutation-targeted therapies, including those with nonsense mutations of CF. By providing critical leadership and coordination, Emilys Entourage drives high-impact research, cultivates multi-stakeholder collaboration, and facilitates information exchange to speed breakthroughs. Our goal is singular: to expedite lifesaving treatments and a cure for the final 10% who are waiting with bated and fading breath.
Founded
1987
9400
X (Twitter)
2017
Address
Merion Station
Home Fast Breakthroughs for Cystic Fibrosis Emilys Entourage speeds lifesaving research and drug development for individuals in the final 10 of the cystic fibrosis CF community that do not benefit from currently available mutationtargeted therapies. GRANTS WE FUND EE has awarded millions of dollars to multidisciplinary teams around the world to advance research and drug development for the final 10 of people with CF. LEARN MORE CLINICAL TRIALS Our cystic fibrosis clinical trial matchmaking program is directtoconsumer making trial recruitment faster more targeted and more efficient. LEARN MORE PATIENT DATABASE Emilys Entourage CF Clinical Trial Connect CTC is the only global patient database exclusively for people with CF who are unable to benefit from CFTR modulators.
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Emily's Entourage
Recent advances have reshaped the future for 90% of individuals with #cysticfibrosis. But for the final 10%, the wait continues—and that wait is hard and scary. That’s why we’re here: to drive the #science forward, faster—so everyone with #CF has a lifesaving breakthrough.
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Fund Raising and/or Fund Distribution Category
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VISION Leading the world in integrative healthcare through science, nature, and education.
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