NephCure
Fighting for a world where all who are affected by rare, protein-spilling kidney disease are connected to new and better treatments — and one day, a cure. NephCure’s mission is to empower people with rare, protein-spilling kidney disease to take charge of their health, while leading the revolution in research, new treatments, and care. NephCure is a U.S. tax exempt 501(c)(3) public charity established in 2000.
Founded
2000
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Home RESOURCES FIND A SPECIALIST CONTACT Creating a better world for everyone affected by rare proteinspilling kidney disease Rare kidney disease RKD touches thousands of lives across the globe every day. NephCure is shaping the future of RKD by empowering patients to take charge of their health while leading the revolution in research new treatments and care. Together were helping everyone affected by RKD thriveand each day getting one step closer to a cure. Diagnosed with a rare proteinspilling kidney disease.
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Together, we can make a real impact in communities around the world. Help us bring hope and support.
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From Social media
News about NephCure from their social media (Facebook and X).
- NephCure
- 2025-08-01
On July 28th, the FDA approved Apellis' drug, EMPAVELI (pegcetacoplan), for patients ages 12 and older living with C3G or primary IC-MPGN. (tw) ... more
Liked (0) Commented (0)- NephCure
- 2025-07-18
RT @ISGDtweets: 🌋The SEISMIC meeting has ignited at our kickoff dinner. (tw) ... more
Liked (0) Commented (0)Discussions
Odpovědí v diskuzi
1
What strategies can NephCure implement to enhance community support and connection for individuals recently diagnosed with rare kidney diseases?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
How can we better educate the public and healthcare professionals about the impact and challenges of living with rare protein-spilling kidney diseases like FSGS and IgA nephropathy?
View
Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
So grateful for NephCure's support! It's amazing to see a community come together to empower those of us affected by rare kidney diseases. 💪💙 #TogetherForCures
Brooklyn Simmons
Product Manager
I love how NephCure not only provides resources but also a sense of belonging for patients and families. It's a beacon of hope for everyone navigating this difficult journey! 🌟 #HopeForRKD
Brooklyn Simmons
Product Manager
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