Pmd Foundation A New Jersey Non Profit Corporation

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#Research #Awareness #Advocacy & #FamilySupport for those with #PelizaeusMerzbacherDisease #PMD #newbornscreening #raredisease #leukodystrophy #myelin The PMD Foundation is a 501(c)3 non-profit organization formed to serve three distinct interest groups as they relate to Pelizaeus-Merzbacher Disease: The Children and Families, the General Public, the Researchers and Clinicians. This family driven foundation will proactively serve those affected by Pelizaeus-Merzbacher Disease (the PMD community) by supporting programs of education, research, service and advocacy. We are dedicated to providing patients and their families with information about their disease and assistance in identifying sources of medical care, social service, and genetic counseling; establishing a communications network among families; increasing public awareness and acting as an information source for health care providers; and promoting research into causes, treatment, prevention and cure of PMD.

ICO

522336287

Facebook

1500

X (Twitter)

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Address

Marlton

Address: 1000 LINCOLN DR E SUITE 201, MarltonWeb: Sign in to see organisation websiteFacebook: ThePmdFoundationX (Twitter): _pmdfoundationRevenue: 74942ICO: 522336287

PMD Foundation Were collecting stories of families and people living with PMD PMLD. The PMD Foundation serves those affected by PMD through education research service and advocacy. Access our resources for families Share your story join our community view helpful information and much more. Were on the cutting edge of research Governments associations and scientists regularly access our repository of research.

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News about from their social media (Facebook and X).

Louis

How can we enhance collaboration between researchers, clinicians, and families to accelerate advancements in PMD research and treatment options?

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Lily

🌟 So grateful for the PMD Foundation and their commitment to advocacy and education. Every story shared brings us closer to understanding and fighting this rare disease. Let’s keep the conversation going! #RareDisease #Awareness

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Yvonne

What are some effective strategies for increasing public awareness about Pelizaeus-Merzbacher Disease and its impact on families?

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Peter

💙 Love what the PMD Foundation is doing! It's so important for families affected by Pelizaeus-Merzbacher Disease to have support and access to resources. Together, we can raise awareness and promote research! #PMD #FamilySupport

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