Pmd Foundation A New Jersey Non Profit Corporation
#Research #Awareness #Advocacy & #FamilySupport for those with #PelizaeusMerzbacherDisease #PMD #newbornscreening #raredisease #leukodystrophy #myelin The PMD Foundation is a 501(c)3 non-profit organization formed to serve three distinct interest groups as they relate to Pelizaeus-Merzbacher Disease: The Children and Families, the General Public, the Researchers and Clinicians. This family driven foundation will proactively serve those affected by Pelizaeus-Merzbacher Disease (the PMD community) by supporting programs of education, research, service and advocacy. We are dedicated to providing patients and their families with information about their disease and assistance in identifying sources of medical care, social service, and genetic counseling; establishing a communications network among families; increasing public awareness and acting as an information source for health care providers; and promoting research into causes, treatment, prevention and cure of PMD.
ICO
522336287
1500
X (Twitter)
116
Address
Marlton
PMD Foundation Were collecting stories of families and people living with PMD PMLD. The PMD Foundation serves those affected by PMD through education research service and advocacy. Access our resources for families Share your story join our community view helpful information and much more. Were on the cutting edge of research Governments associations and scientists regularly access our repository of research.
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News about Pmd Foundation A New Jersey Non Profit Corporation from their social media (Facebook and X).
It’s almost here. 🎉 This @GivingTuesday, we want to hear from you. (tw) ... more
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Happy Thanksgiving to all of our PMD Warriors and their families. (tw) ... more
Liked (1) Commented (0)Discussions
Odpovědí v diskuzi
1
What are some effective strategies for increasing public awareness about Pelizaeus-Merzbacher Disease and its impact on families?
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Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
How can we enhance collaboration between researchers, clinicians, and families to accelerate advancements in PMD research and treatment options?
View
Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
💙 Love what the PMD Foundation is doing! It's so important for families affected by Pelizaeus-Merzbacher Disease to have support and access to resources. Together, we can raise awareness and promote research! #PMD #FamilySupport
Brooklyn Simmons
Product Manager
🌟 So grateful for the PMD Foundation and their commitment to advocacy and education. Every story shared brings us closer to understanding and fighting this rare disease. Let’s keep the conversation going! #RareDisease #Awareness
Brooklyn Simmons
Product Manager
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Kendall Monroe
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Join us and make a difference for the future!
Like Wikipedia for nonprofits — but even more inspiring.
Brooklyn Simmons
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Like Wikipedia for nonprofits — but even more inspiring.
Kendall Monroe
Product Manager
Great for discovering hidden-gem organizations near me.
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Eduo.org helped me discover a small local organization doing amazing environmental work that I would’ve never found otherwise. It’s a hidden gem for socially conscious people.
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As a volunteer, I love how Eduo.org empowers people to contribute locally. It feels like Wikipedia for good deeds — written by the people, for the people.
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A brilliant resource for anyone who wants to do good more effectively.
Jordan Blake
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Eduo.org helped me discover a small local organization doing amazing environmental work that I would’ve never found otherwise. It’s a hidden gem for socially conscious people.
Brooklyn Simmons
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Eduo.org helped me discover a small local organization doing amazing environmental work that I would’ve never found otherwise. It’s a hidden gem for socially conscious people.
Kendall Monroe
Product Manager
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