
Pmd Foundation A New Jersey Non Profit Corporation
#Research #Awareness #Advocacy & #FamilySupport for those with #PelizaeusMerzbacherDisease #PMD #newbornscreening #raredisease #leukodystrophy #myelin The PMD Foundation is a 501(c)3 non-profit organization formed to serve three distinct interest groups as they relate to Pelizaeus-Merzbacher Disease: The Children and Families, the General Public, the Researchers and Clinicians. This family driven foundation will proactively serve those affected by Pelizaeus-Merzbacher Disease (the PMD community) by supporting programs of education, research, service and advocacy. We are dedicated to providing patients and their families with information about their disease and assistance in identifying sources of medical care, social service, and genetic counseling; establishing a communications network among families; increasing public awareness and acting as an information source for health care providers; and promoting research into causes, treatment, prevention and cure of PMD.

ICO
522336287
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X (Twitter)
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Address
Marlton
PMD Foundation Were collecting stories of families and people living with PMD PMLD. The PMD Foundation serves those affected by PMD through education research service and advocacy. Access our resources for families Share your story join our community view helpful information and much more. Were on the cutting edge of research Governments associations and scientists regularly access our repository of research.
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