FABRY SUPPORT & INFORMATION GROUP
Home
Increasing awareness for those with Fabry disease to create a brighter future, and better lives today - Education, Support, Awareness and Advocacy Founded in 1996, this group was created by Fabry patients to share information with others suffering from the disease and their families as well as educate about treatment options.
431890134
EIN
2000
Founded
Concordia, MO 64020 USA
Address
fabry.org
Web
fabryorg
Twitter (376)
Fabry.org
Facebook (1400)
More from Concordia
Extreme Encounters Inc |
|
Sunset Home Inc |
|
Missio Christi Network |
|
North Central Kansas NCK Casa Inc |
|
Cloud County Genealogical Society |
Similar social media (1776)
Easley Soccer Club1777 |
|
New Jersey Council of Teachers of English1777 |
|
SAFE HARBOUR INC1777 |
|
Franciscan Works1777 |
|
National Association for Continence3677 |
News
Nearby
8
Employee
2
Volunteer
4.5
Reviews
Concordia
Place
About the organization
- 660, G80, W01, H80 -
Fabry Support Information Group Our Mission It is the mission of the Fabry Support Information Group FSIG to raise awareness of Fabry disease and its symptoms to advocate for community needs and to lead the fight for the most effective treatment possible and eventually a cure. FSIG provides a link for the Fabry community to information each other the medical community researchers the pharmaceutical industry and regulatory authorities. FSIG strives to support affected families and individuals lead fuller lives. Years 29 Helping Families Over 270 Patient Stories Over 1.
Specifically Named Diseases Alliance/Advocacy Organizations Specifically Named Diseases Research
23 Vacancy
More Detail
