FABRY SUPPORT & INFORMATION GROUP
Increasing awareness for those with Fabry disease to create a brighter future, and better lives today - Education, Support, Awareness and Advocacy Founded in 1996, this group was created by Fabry patients to share information with others suffering from the disease and their families as well as educate about treatment options. Fabry Support & Information Group (FSIG) is a 501(c)(3) nonprofit organization. Our mission is to raise awareness of Fabry disease and its symptoms and to improve the quality of life for those affected by Fabry. The FSIG website provides information and mutual self-help by linking patients and family members/caregivers. In this way members can support and encourage one another. An increased understanding of Fabry disease and emotional support may alleviate some of the burden associated with this rare disorder.
Founded
2000
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376
Traffic
4862287
Home Fabry Support Information Group Our Mission It is the mission of the Fabry Support Information Group FSIG to raise awareness of Fabry disease and its symptoms to advocate for community needs and to lead the fight for the most effective treatment possible and eventually a cure. FSIG provides a link for the Fabry community to information each other the medical community researchers the pharmaceutical industry and regulatory authorities. FSIG strives to support affected families and individuals lead fuller lives. Years 29 Helping Families Over 270 Patient Stories Over 1.
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