FABRY SUPPORT & INFORMATION GROUP
Increasing awareness for those with Fabry disease to create a brighter future, and better lives today - Education, Support, Awareness and Advocacy Founded in 1996, this group was created by Fabry patients to share information with others suffering from the disease and their families as well as educate about treatment options. Fabry Support & Information Group (FSIG) is a 501(c)(3) nonprofit organization. Our mission is to raise awareness of Fabry disease and its symptoms and to improve the quality of life for those affected by Fabry. The FSIG website provides information and mutual self-help by linking patients and family members/caregivers. In this way members can support and encourage one another. An increased understanding of Fabry disease and emotional support may alleviate some of the burden associated with this rare disorder.
Founded
2000
1400
X (Twitter)
376
Address
Concordia
Home Fabry Support Information Group Our Mission It is the mission of the Fabry Support Information Group FSIG to raise awareness of Fabry disease and its symptoms to advocate for community needs and to lead the fight for the most effective treatment possible and eventually a cure. FSIG provides a link for the Fabry community to information each other the medical community researchers the pharmaceutical industry and regulatory authorities. FSIG strives to support affected families and individuals lead fuller lives. Years 29 Helping Families Over 270 Patient Stories Over 1.
Data & Similar organisations
Together, we can make a real impact in communities around the world. Help us bring hope and support.
Similar organisations
International Rett Syndrome Association, Inc.
IRSF's vision is to create a world without Rett syndrome.
For more information about who we are and what we do, please visit www.
Similar Organisations Worldwide
Fabry Australia Incorporated (au)
Fabry Australia is an independent Patient Organisation registered with the Australian Charities and N.
THE FABRYS CHARITY ASSOCIATION (ca)
A platform for the Fabry Community to be inspired, educated, and to share a common goal to Live Well.
More from Concordia
Mid Missouri Micro Midget Racing Association
The Home of Weekly Micro Sprint Racing Action.
Lutheran Bible Translators, Inc.
Lutheran Bible Translators partners with local leaders around the world to launch Bible translation movements.
Similar social media (1776)
The mission of Safe Harbour is to provide a continuum of housing and supportive services for homeless and nearly homeless individuals and families in our communities.
Armstrong Cooper Youth Hockey Association
ACYHA is dedicated to providing area youth with the opportunity to play and learn the game of hockey.
Every pair SOld, we GIVe.
Category
Saline Animal League, founded in 1997, is a 501c3 humane animal welfare nonprofit organization.
Lutheran Bible Translators, Inc.
Lutheran Bible Translators partners with local leaders around the world to launch Bible translation movements.
We are a light to the darkness, offering hope and a future, showing people that they matter, they are seen, they are loved, they are not alone.
Discussions
Odpovědí v diskuzi
1
- How can the Fabry Support & Information Group enhance collaboration with the pharmaceutical industry to improve treatment options for Fabry patients?
View
Brooklyn Simmons
2 days ago
Odpovědí v diskuzi
1
- What role do you think social media plays in raising awareness and advocating for Fabry disease on a global scale?
View
Brooklyn Simmons
2 days ago
Latest reviews
Together, we can make a real impact in communities around the world. Help us bring hope and support.
So grateful for the work FSIG is doing to raise awareness about Fabry disease! Together, we can create a brighter future for those affected. 💚 #FabryAwareness
Brooklyn Simmons
Product Manager
Big shoutout to the Fabry Support & Information Group for providing such valuable resources and support for families! Your dedication truly makes a difference in our lives! 🙌 #SupportEachOther
Brooklyn Simmons
Product Manager
Share your comment / review / opinion
Kendall Monroe
Product Manager
Join us and make a difference for the future!
I found my favorite volunteer opportunity thanks to Eduo!
Brooklyn Simmons
Product Manager
Like Wikipedia for nonprofits — but even more inspiring.
Kendall Monroe
Product Manager
As a volunteer, I love how Eduo.org empowers people to contribute locally. It feels like Wikipedia for good deeds — written by the people, for the people.
Madison Carter
Product Manager
Eduo.org helped me discover a small local organization doing amazing environmental work that I would’ve never found otherwise. It’s a hidden gem for socially conscious people.
Riley Bennett
Product Manager
Eduo connects you to causes that actually matter to you.
Sydney Parker
Product Manager
Great for discovering hidden-gem organizations near me.
Jordan Blake
Product Manager
Eduo.org helped me discover a small local organization doing amazing environmental work that I would’ve never found otherwise. It’s a hidden gem for socially conscious people.
Brooklyn Simmons
Product Manager
Eduo.org makes finding trustworthy nonprofits refreshingly simple.
Kendall Monroe
Product Manager
Sign Up
Please fill in your information. Everything is free, we might contact you with updates (but cancel any time!)
Sign in with Google