Connor B Judge Foundation

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Raising global awareness of #NMOSD & #MOGAD, building community, supporting research, advocating for rare disease patients/caregivers. Illuminating the darkness of NMOSD & MOGAD

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473333588

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Bay Village

Address: 580 Bayfair Dr, Bay VillageWeb: Sign in to see organisation websiteFacebook: TheSumairaFoundationX (Twitter): TheSumairaFDNICO: 473333588

NMOSD & MOGAD | Sumaira Foundation The Sumaira Foundation is a 501c3 organization dedicated to generating global awareness of NMOSD and MOGAD building communities of support for patients and their caregivers supporting research and patient advocacy NMOSD Neuromyelitis optica spectrum disorder NMOSD is a rare neuroimmune condition in which the immune system attacks cells in the central nervous system CNS mistaking them for foreign invaders. Common symptoms include vision loss color vision deficiency paralysis paraparesis weakness numbness spasticity vomiting hiccups and bladderbowel dysfunction. MOGAD Myelin oligodendrocyte glycoprotein antibodyassociated disease MOGAD is a rare neuroimmune condition that targets the MOG protein which is located on the surface of myelin sheaths in the central nervous system. Common symptoms include vision loss color vision deficiency paralysis paraparesis weakness numbness spasticity vomiting hiccups seizures and bladderbowel dysfunction.

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Connor B Judge Foundation

Join us on October 18th for Seattle Patient Day for Rare Neuroinflammatory Disorders where you'll learn from the experts, be inspired by patients and caregivers and make new friends. Meet our fabulous patient and caregiver panelists: πŸ¦„ Alicia πŸ¦„ Bryce πŸ¦„ Jill πŸ¦„ Ken πŸ¦„ Lisa & Bravo πŸ¦„ Melinda πŸ¦„ Melody πŸ¦„ Michael πŸ¦„ Michelle πŸ¦„ Rachael πŸ¦„ Tara πŸ¦„ Taylor πŸ¦„ Teri πŸ¦„ Tracy πŸ¦„ Wennie πŸ¦„ Vanessa If you’re impacted by AE, CNS Vasculitis, MOGAD, neurosarcoidosis, NMOSD or SPS and are from the Pacific Northwest region, join us for a day of education, connection and impact. To register, visit www.

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Victor

🌍Amazing work by the Connor B Judge Foundation in advocating for rare disease patients! Let's continue to build a strong community and support research efforts. Every small step makes a difference! #TogetherWeCan #Advocacy πŸ’ͺ✨

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Veronica

πŸ’™Together, we can shine a light on NMOSD and MOGAD! Let's raise awareness and support those affected by these rare diseases. #CommunitySupport #NMOSD #MOGADπŸ’™

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Jacob

2. How can we foster a more supportive community for patients and caregivers affected by rare neuroimmune diseases like NMOSD and MOGAD?

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Emily

1. What strategies can we implement to increase global awareness and understanding of NMOSD and MOGAD among healthcare professionals and the general public?

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