Prader-Willi Syndrome Association | USA

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What’s YOUR story? Tweet us and tell us what it’s like #GrowingUpRare We hope you will suggest the PWSA | USA facebook page to your friends! Website: www.pwsausa.org PWSA (USA) is an organization of families and professionals working together to promote and fund research, provide education, and offer support to enhance the quality of life of those affected by Prader-Willi syndrome.

Founded

1977

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15000

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Address: BRANDON, FL 33511-5509, Legal name of organization: Prader-Willi Syndrome Association | USAWeb: Sign in to see organisation websiteFacebook: pwsausaX (Twitter): pwsausaEmployees: 16Volunteers: 350Revenue: 1577352ICO: 411306908

Prader-Willi Syndrome Association USA - Supporting Families PraderWilli Syndrome Association USA Empowering Individuals Supporting Families PWS Advocacy Awareness PWS Family Support PWSA USA Family Support team provides individuals diagnosed with PraderWilli syndrome their families and care providers with critical information and resources on PWS. PWS Research PWSA USA seeks to support research projects with the potential for immediate and high impact for the PraderWilli Syndrome community. Registration is now OPEN for the 2025 International PWS Conference. Join PWSA USA IPWSO and FPWR June 2428 2025 in Phoenix Arizona.

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Prader-Willi Syndrome Association | USA

PWS Awareness Fact #19: Gross motor milestones are often delayed due to hypotonia. Early access to physical therapy and gross motor play aid in improving gross motor strength. * Visit https://www.

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Prader-Willi Syndrome Association | USA

Our United We Brunch fundraisers are well underway. United We Brunch is all about raising awareness, fostering hope, and gathering resources-- one brunch, one state, and one family at a time—uniting communities and creating a ripple effect across the U. S.

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Pamela

🌟 Excited to see so much happening with the Prader-Willi Syndrome Association! Can't wait for the upcoming conference and the chance to connect with others in our community. Let's keep advocating and raising awareness together!

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Lucy

What are some effective strategies for raising awareness about Prader-Willi Syndrome within local communities?

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Miles

How can the Prader-Willi Syndrome Association enhance its support services for families facing new diagnoses?

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Ellen

💙 So grateful for the PWSA | USA team! Their resources and support have made such a difference for families like ours. Let’s spread the word and help more people find the help they need! #GrowingUpRare

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