
Sanfilippo Hope Initiative
Jarod and Caleb are brothers who suffer from an ultra-rare disease called Sanfilippo Syndrome. We are determined to find a cure for them!

Sanfilippo Hope Initiative
The Sanfilippo Hope Initiative is a United States-based nonprofit organization dedicated to supporting individuals with Sanfilippo Syndrome, a rare and devastating genetic disorder. This initiative focuses on raising awareness about the disease, providing assistance to affected families, and promoting research towards finding a cure.
Mission
The organization's primary mission is centered around three key objectives:
- Support to Families: Offering assistance to families coping with Sanfilippo Syndrome.
- Awareness and Research: Raising awareness about the disease and funding research into potential treatments.
- Cure Development: Ultimately striving to find a cure for Sanfilippo Syndrome.
Background
Sanfilippo Syndrome, also known as Mucopolysaccharidosis type III, is characterized by severe neurodegenerative symptoms, typically resulting in death by the mid-teens. There are currently no effective treatments or cures available for this condition.
Activities
The Sanfilippo Hope Initiative engages in various activities to fulfill its mission:
- Fundraising and Research Support: The organization relies on donations to support research projects and programs aimed at understanding and treating Sanfilippo Syndrome.
- Community Engagement: Through events and campaigns, the initiative encourages community involvement and public awareness about the disease.
Objective
By joining forces with other organizations and grassroots efforts, the Sanfilippo Hope Initiative aims to improve the quality of life for individuals with Sanfilippo Syndrome and strive towards a future with more effective treatments and a possible cure.
Edit WikiICO
471716277
X (Twitter)
33
Address
Hudsonville
Team Jarod/Team Caleb
From Social media
News about from their social media (Facebook and X).
Data about organisation
Birth Defects, Genetic Diseases Research Category
Organisations with similar rank to Sanfilippo Hope Initiative in category Birth Defects, Genetic Diseases Research

77. Foundation for A Cure for Mitochondrial Disease Inc
MitoCure exists to educate communities about Mitochondrial Disease and to generate financial support.
Hudsonville
Organisations from Sanfilippo Hope Initiative

1Saved International is a Christ-centered nonprofit committed to fighting child sex trafficking.

Our Vision: We inspire families to take control of their financial health.
Similar organisations
Similar organisations to Sanfilippo Hope Initiative based on mission, location, activites.

FAMILIAL DYSAUTONOMIA NOW FOUNDATION
FD NOW is a 501c3 non-profit organization dedicated to funding the fast-track research at the Laboratory for Familial Dysautonomia Research at Fordham University in New York, USA.

PKS is a rare tetrasomy of 12p.
Similar Organisations Worldwide
Organisations in the world similar to Sanfilippo Hope Initiative.

Genetic Cures For Kids Inc (au)
Please help save Tallulah Moon and all kids living with SPG56.
Interesting nearby
Interesting organisations close by to residence of Sanfilippo Hope Initiative

Official Facebook Page for DYRK1A Syndrome International Association a nonprofit for DYRK1A Syndrome.

Brio Living Services has been serving older adults for more than 160 years.
Similar social media (33)
Organisations with similar social media impact to Sanfilippo Hope Initiative
Similar social mediaJoin us and make a difference for the future!
Sign Up
Please fill in your information. Everything is free, we might contact you with updates (but cancel any time!)
Sign in with GoogleOr
Good News

"Feeling inspired by how communities can come together for the common good! Folks in Chicago are banding together to support their neighbors, resisting fear with solidarity. Let's spread love and kindness in our own neighborhoods! 💪❤️ #CommunitySupport #GoodNews"
Chicago citizens and businesses unite to resist ICE - The Boston Globe
The Boston Globe
Like Comment
"Exciting news! 🌟 Messi extends his stay with Inter Miami through 2028! This shows the power of sports to inspire and uplift communities. Let's continue to support positive changes in the world through our passions! ⚽❤️ #Messi #InterMiami #GoodNews"
Messi, Inter Miami sign extension through 2028
ESPN.com
Like Comment
🌟 Exciting news for aspiring entrepreneurs! Girlboss Media is relaunching its iconic podcast, inspiring a new wave of ambition and supporting women in business! 💪✨ #Girlboss #WomenEmpowerment
Girlboss Media Relaunches Its Iconic Podcast With a Fresh Look, All-Star Host, and a New Era of Ambition
Benzinga
Like Comment