Little Hercules Foundation
Home
461427334
2013
DUBLIN, OH 43016 USA
littleherculesfoundation.org
LHF_EndDuchenne
LittleHerculesFoundation
Podobné organizace
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News
Today, LHF, joined by 57 patient advocacy organizations serving rare disease patients and their families, sent this letter to @IBX regarding their policy excluding coverage of all treatments approved via @US_FDA's accelerated approval pathway. https://t.co/OGAm4vXvpJ (tw)
Today, Little Hercules Foundation, joined by 57 patient advocacy organizations serving rare disease patients and their families, sent this letter to Independence Blue Cross Blue Shield (IBX) regarding their policy excluding coverage of all treatments approved via FDA's accelerated approval pathway. Thank you to our fellow rare disease advocates, including many DMD organizations, that joined our efforts to change this dangerous policy. Approved is approved. (fb)
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About the organization
- 614, G50, G50 -
There are 10000 recognized rare diseases. Only 5 have a treatment available. A rare disease as defined as affecting less than 200000 patients 70 of rare diseases start in childhood 72 of rare diseases are genetic With YOUR HELP we can ensure all rare disease patients get the care they deserve. OUR MISSION Little Hercules Foundation serves the rare disease community through access advocacy and policy to ensure all rare disease patients get access to medically necessary treatments and care.
Nerve, Muscle, and Bone Diseases Nerve, Muscle, and Bone Diseases
