Helping Hands for Gand Inc.

Overview

Helping Hands for Gand Inc. is a U.S.-based nonprofit organization designated as a 501(c)(3) entity. Founded with the primary objective of raising awareness about Gatad2b-Associated Neurodevelopmental Disorder (GAND), the organization advocates for medical treatments and supports affected families.

Mission

The mission of Helping Hands for Gand Inc. centers on increasing awareness of GAND, a rare genetic condition caused by mutations in the GATAD2B gene. The organization works to advance research and facilitate access to medical treatments for those affected by this neurodevelopmental disorder. It collaborates with other organizations, such as Global Genes, to organize events that bring together families and researchers.

Activities

Helping Hands for Gand Inc. has been involved in organizing significant events like the Gand Gathering & Scientific Conference. These events provide a platform for families affected by GAND to connect with researchers and form a supportive community. Additionally, the organization maintains an online support system, which has attracted a notable number of unique visitors and page views.

Financials and Governance

The organization's revenue primarily comes from contributions, with no compensation paid to its officers. Key personnel include Jennifer Martin as President. The nonprofit operates with zero liabilities and has experienced growth in total assets over recent years.

Impact

Helping Hands for Gand Inc. has awarded substantial research grants, demonstrating its commitment to advancing the understanding and treatment of GAND. The organization's efforts in raising awareness and fostering a supportive community have been crucial in promoting research and support for individuals with GAND.

Legitimacy and Transparency

Registered as a tax-exempt organization since 2015, Helping Hands for Gand Inc. submits annual Form 990EZ reports to the IRS, ensuring operational transparency. Donations to the organization are tax-deductible, reflecting its legitimacy and compliance with regulatory requirements.

Executive Team

• Jennifer Martin: President
• Tammy Ruh: Vice President
• Kristen McConnell: Secretary
• Adam Bresser: Treasurer/Director
• Rachel Trager: Director of Development

Notable Achievements

By awarding research grants and developing a patient registry, Helping Hands for Gand Inc. continues to contribute significantly to the advancement of treatments for GAND. Its partnerships and community engagement efforts have been instrumental in shaping a supportive environment for families affected by this condition.