Friends of Telethon Foundation Italy Inc.

Overview

Friends of Telethon Foundation Italy Inc., identified by Employer Identification Number (EIN) 47-1635833, is a U.S.-based nonprofit organization dedicated to supporting research aimed at curing rare genetic diseases. It operates under the operational name Daybreak Children’s Rare Disease Fund.

Mission

The primary mission of Friends of Telethon Foundation Italy Inc. is to support the best research focused on the cure of rare genetic diseases. The organization primarily benefits Fondazione Telethon Italia and its affiliated world-class research centers, including the San Raffaele-Telethon Institute for Gene Therapy (SR-TIGET) and the TIGEM.

Financial Overview

As of the most recent publicly available data, in 2020, the organization reported revenues of approximately $9,430 and expenses of about $15,400. It held total assets valued at around $79,800, with liabilities of approximately $2,200[1]. In previous years, such as 2016, the organization received contributions of $160,880, which constituted 100% of its revenue[1].

Activities

• Fundraising: The organization engages in fundraising activities to support research projects primarily in Italy.
• Awareness and Advocacy: It also works to raise awareness about rare genetic diseases and promotes the timely development and availability of safe and effective diagnostics and treatments for affected individuals.
• Supporting Research Centers: The primary recipients of its efforts are advanced research centers like SR-TIGET and TIGEM, which are renowned for their work in gene therapy and genetic diseases.

Relationship with Fondazione Telethon

Fondazione Telethon, established in Italy in 1990, is one of the principal beneficiaries of Friends of Telethon Foundation Italy Inc. Fondazione Telethon is recognized for its significant investments in biomedical research, particularly in the area of rare diseases, having funded numerous projects and supported the development of life-changing therapies like Strimvelis and Libmeldy[2][3]. The connection with Fondazione Telethon allows Friends of Telethon Foundation Italy Inc. to play a crucial role in advancing research in rare genetic diseases on an international scale.